Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

How do I do Things for Myself when I’m …

Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s after; knowing it was worth it. It could be attending an event, being social, travelling or simply doing the household chores. “Pushing through” was something I did alot when I…


June Goals

How did May’s goals go? Here is what I set myself for the month of May: GOALS: Recover. See more healing of my wounds. Have a solid appointment for my surgical follow up, May 14th. TASKS: Try to complete 50% of my ‘long-term’ to do list. Continue the honest of post op recovery online – social media and blogging. Possibly return to work, completely dependent on my perianal wound.   Let’s recap… Let’s begin with how Month Two of recovery went. I started the month on antibiotics for two weeks. I had my Vedolizumab rescheduled for the second time because my…


May 2019

Another Month… Stoma wise; I’ve actually had some great improvements in my skin, even with the humid weather! I’ve gotten used to my new deeper convex bag and ordered my new supplies with my new delivery company. I haven’t got to go back for a review for another month, so I am settling down into my old routine of two days with each bag on but I do also have the luxury and freedom to change when I need to as I’m still off sick. IBD wise; I’ve experienced a huge increase in my symptoms. While manage my wound and…


Guest Post: MyTherapy

IBD: TAKING CHARGE OF YOUR DISEASE Living with IBD can be difficult sometimes with unpredictable episodes and regular hospital visits that disrupts normal daily activities. However, if the symptoms are well managed, people diagnosed with IBD can live normally with the condition. IBD has been a topic of interest for many people and has become a burden for ages since what specifically causes it is actually not known. So much noise is made about diagnosis and treatment, that Little attention is given to how people diagnosed with this condition are able to accept and live with it for the rest…


World IBD Day 2019

  “We know It Takes Guts to talk about Crohn’s and Colitis. This World IBD Day, we are supporting people to start conversations that really matter. Crohn’s and Colitis are invisible illnesses and because of the stigma that surrounds them, thousands of people are suffering in silence. It’s time to speak up.” – Crohn’s and Colitis UK   This year, Crohn’s and Colitis UK have launched a new website – It Takes Guts – for World IBD Day. “Break the silence. It takes guts to talk about Crohn’s and Colitis. But no one can see it until we say it.…



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