Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

How do I do Things for Myself when I’m …

Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s after; knowing it was worth it. It could be attending an event, being social, travelling or simply doing the household chores. “Pushing through” was something I did alot when I…


Guest Post: MyTherapy

IBD: TAKING CHARGE OF YOUR DISEASE Living with IBD can be difficult sometimes with unpredictable episodes and regular hospital visits that disrupts normal daily activities. However, if the symptoms are well managed, people diagnosed with IBD can live normally with the condition. IBD has been a topic of interest for many people and has become a burden for ages since what specifically causes it is actually not known. So much noise is made about diagnosis and treatment, that Little attention is given to how people diagnosed with this condition are able to accept and live with it for the rest…


World IBD Day 2019

  “We know It Takes Guts to talk about Crohn’s and Colitis. This World IBD Day, we are supporting people to start conversations that really matter. Crohn’s and Colitis are invisible illnesses and because of the stigma that surrounds them, thousands of people are suffering in silence. It’s time to speak up.” – Crohn’s and Colitis UK   This year, Crohn’s and Colitis UK have launched a new website – It Takes Guts – for World IBD Day. “Break the silence. It takes guts to talk about Crohn’s and Colitis. But no one can see it until we say it.…


Post Surgery Check Up

The waiting game Travelled to Stamford this morning to check in with my surgeon following my operation, six weeks and five days ago. I can hardly believe its the middle of May, let alone comprehend that it’s been that long since my surgery back in late March. I have seen my consultant since being discharge from hospital and we regularly email about my symptoms and progress. Despite that interaction, it’s been a while since I attended an actual hospital appointment. He does not mince his words but is careful with what he does say. In the same instance he is…


Surgery Anniversary

I’ve been thinking alot lately about surgery and it’s sometimes negative reputation and impact on the chronically ill.   When I was first diagnosed with Crohn’s disease and we were discussing treatment options for controlling it, I was positive that I could fight this without the need of surgery. I remained feeling that particular way for many years, even as I went on and came off several medications – noted here as Humira, Azathioprine, Mesalazine, Mercaptopurine, Infliximab and Methotrexate – my resolve to not want or need surgery stayed the same. I continued to have my blood work monitored, my…



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