Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the traditional medication options open to me at the time but chose to have surgery in 2016. This was to remove a large narrowing in my small bowel. Three months later, I had my colon removed and lived with a temporary ileostomy until 2019 when it was made permanent.

While living with a stoma, I have had my IBD better controlled, meaning I was finally able to attack life with more gusto. I now work, live with my partner and consider this blog to be my outlet for my #adventureswithachronicillness

I speak passionately about both living with IBD and with an ostomy, as well as how these impact my mental health. I am candid, sometimes humorous and always knowledgable.

This is Not My First Choice

Monday. This morning I ordered my stoma supplies with my delivery company and my prescription with my GP.  By next week I’ll be organising and putting away another months worth of supplies to get me through August.  August. My stoma was created three years ago this August. The day before my partners birthday – we celebrated my ‘new’ chapter and his life.  I was always very comfortable with my stoma. Never really hated it as a concept, just what it would do to my skin when my new liquid poop burnt my skin. There are ways to cope with that, but what…

Share:

Life Lately | Surgical & IBD Update

Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps – feeling well enough when waking up that I feel productive and motivated, and then feeling unwell on waking up that I have to spent the day recovering from whatever…

Share:

High and Low Symptom Days

One of the worse things about IBD is having unexpected flare ups. You could be perfectly find and then out of nowhere, a deep burning pain starts to build. It’s uncomfortable, unpredictable and can last anywhere from minutes to hours. The best we can do is try to always prepare for it – having heat wraps, painkillers and medications, safe food or drink options, and natural remedies on standby. And as much as it sucks, try to remind yourself that what goes up must come down. I’ve lived with Crohn’s Disease for almost a decade now and I still sometimes…

Share:

July Goals

How did June’s goals go? Here is what I set myself for the month of June: GOALS: Do one task every day. Do something every day I didn’t do the day before. Keep up my real and honest account of wound recovery. TASKS: Make a start on a new project proposal. Not neglect journaling if I am not blogging. Look after my personal health. Let’s recap… Let’s begin with how Month Three of Recovery went. The beginning of the month was met with stronger painkillers to help settle down the pain in my new perianal wound. As luck would have it,…

Share:

June 2019

Month Three.   Stoma wise; I’ve had abit of a rough time with my ostomy. In the days and then weeks following my Vedolizumab at the end of May, I was experiencing very loose output and multiple empties. I had to rely on gelling solutions to get my output thicker so I could manage it in the bag itself and when emptying. It was exhausting. Added to that my IBD was flaring slightly, I found eating hard due to so much nausea. Thankfully, that has now resolved itself but it’s brought alot more sore peristomal skin in my usual place…

Share:

Instagram

1   23
1   10
2   17
10   16
0   30
1   30
0   14
0   3
0   7
0   8
1   21
0   25
2   36
4   35

Looking for Something?