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Welcome to Young Crohns

I’m Louise and I write about my ‘Adventures with a Chronic Illness’.
I have Crohns Disease, a form of Inflammatory Bowel Disease and live with a permanent ileostomy.

Latest Posts

Building Good Relationships with your Medical & Surgical Teams

06/07/2022
How to Make the Most of your F2F, Telephone & Virtual Appointments

15/06/2022
Let's Talk About: Infusions in IBD

08/06/2022

Set myself a very high reading challenge at the be

Someone commented last week saying why did I conti

𝙄 𝙙𝙤𝙣'𝙩 𝙠𝙣𝙤𝙬 𝙬𝙝𝙤 𝙣𝙚𝙚𝙙𝙨 𝙩𝙤 𝙧𝙚𝙖𝙙 𝙩𝙝𝙞𝙨 𝙩𝙤𝙙𝙖𝙮, 𝙗𝙪𝙩 𝙩𝙝𝙚𝙧𝙚 𝙞𝙨 𝙣𝙤 𝙧𝙞𝙜𝙝𝙩 𝙬𝙖𝙮 𝙤𝙛 𝙡𝙞𝙫𝙞𝙣𝙜 𝙬𝙞𝙩𝙝 𝙖 𝙘𝙝𝙧𝙤𝙣𝙞𝙘 𝙞𝙡𝙡𝙣𝙚𝙨𝙨⁠
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Simple and straightforward, there is no right or wrong way to live with your chronic illness.⁠
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If the phrase 'you do you' was meant for anything, let it be meant for this; only you know what is best for your body. Take on board the advice from your medical team - like don't ignore major or critical symptoms - but follow your gut. ⁠
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[𝘴𝘰𝘮𝘦𝘸𝘩𝘢𝘵 𝘪𝘳𝘰𝘯𝘪𝘤 𝘧𝘰𝘳 𝘥𝘪𝘨𝘦𝘴𝘵𝘪𝘷𝘦 𝘥𝘪𝘴𝘰𝘳𝘥𝘦𝘳𝘴, 𝘣𝘶𝘵 𝘸𝘩𝘢𝘵𝘦𝘷]⁠
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YOU live with your condition.⁠
YOU know what you need.⁠
YOU know when something isn't right.⁠
YOU also know when it's going right, so follow that feeling. ⁠
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I do not dictate anyone else's journey with a chronic illness, and no one dictates mine ✌🏻⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

𝑰𝒕'𝒔 𝒆𝒂𝒔𝒊𝒆𝒓 𝒕𝒐 𝒔𝒂𝒚 𝑰'𝒎 𝒇𝒊𝒏𝒆, 𝒃𝒆𝒄𝒂𝒖𝒔𝒆 𝒘𝒉𝒂𝒕 𝒂𝒓𝒆 𝒚𝒐𝒖 𝒈𝒐𝒊𝒏𝒈 𝒕𝒐 𝒅𝒐 𝒂𝒃𝒐𝒖𝒕 𝒊𝒕 𝒊𝒇 𝑰'𝒎 𝒏𝒐𝒕?⁠
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It's almost like autopilot to say "I'm fine" when I get asked if I am okay. Quite alot of the time, I am actually doing okay, but when I'm not okay, I still tend to say "I'm fine" - why?⁠
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It is easier, for sure.⁠
Easier for me to keep my health, sometimes, to myself.⁠
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I've had IBD for a long time now, I know when I'm starting to slip and I get steps in place to help me out. So when I say "I'm fine" but unwell, it's because I've already had a health conversation or two and I'm just protecting myself.⁠
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This week I've got two procedures - a pelvic MRI and an ileoscope - both of which have some anxiety for me. Even more so this time; they are close together, I am feeling some pain (partly why these are happening) and I'm stressing about working around them, organising access of my port for one as well as the whole 'what if they find something I need surgery or more medication for?" which accompanies me for most of these things. ⁠
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So yeah, saying all those thoughts and feelings to someone outside of my support group is complex. So being 'fine' is so much easier to be, to some people.⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

Embroidery appreciation in full swing! In the pa

Does anybody else feel like they need this?⁠ ⁠

I've been humbled this week as I know several frie

I'm joking but also, not ☠️⁠ ⁠ -⁠ -⁠ -

Today will be the first time I am visiting the hos

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Louise Hunt Follow

She/her✨• #IBD #ostomy blogger & advocate • #boweldisease awareness & education • @crohnscolitisuk Research Champion • AAT student

Louise Hunt @louisehelenhunt ·

14h

Cats (Ava L and Newton R) were definitely too hot yday. NOWHERE is cool in our house 😓🫠

2

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Louise Hunt @louisehelenhunt ·

14h

I decided to get both - why not right? - so I can decide on the day.

Keep your eyes 👀 peeled for the 📸

Louise Hunt @louisehelenhunt

I’ve got a secret 🤫 thang at the end of the month and need a bikini.

Do I embrace the high waisted to almost cover my stoma bag and tum or do I go high leg and let the tum and stoma be? 🥹🥹🥹🥹

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Louise Hunt @louisehelenhunt ·

11 Aug

I’ve got a secret 🤫 thang at the end of the month and need a bikini.

Do I embrace the high waisted to almost cover my stoma bag and tum or do I go high leg and let the tum and stoma be? 🥹🥹🥹🥹