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Experimenting and Exploring Food with an Ostomy
Inspired and a follow up to my 2016 post “My Tips for Eating with an Ostomy” Disclaimer: This information is based on my own personal experiences. Please remember that each…
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I AM SCARED, despite being in such a joyous season
December always feels like the most scary month for me. I have no triggers or flashbacks for this month in particular, but there is such a drive away from routine…
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Never Give Up Hope
Every October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked…
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Flare Up Management
How to make decisions to help tame the IBD monster NB: This had been intended to be written before we knew anything about coronavirus (COVID-19) so there has been the…
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Hernias & Stomas
I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You…
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Remaining Strong in the Face of Chronic Illness
“Just because you carry it well, does not mean it’s not heavy” I find myself thinking about this quote more and more frequently these days. Not sure if it’s lockdown…
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Being [Unexpectedly] Medication Free for a Year
I remember vividly two days that began my journey with Vedolizumab; “she returned my call, the long and short of it being that “no, this isn’t working“; agreeing with my…
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Having Major Surgery During a Pandemic
I know almost all of us did not expect nor predict that 2020 would be how it has been thus far. It has been without a doubt the most challenging…
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Ostomy Glossary
When I was first new to my stoma, I was boggled by the terminology. There were so many new words, so many words that meant the same thing but in…