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“Is having a stoma a fix or cure for IBD?”
Read MoreIf I had a pound for every time I got asked this immediately after surgery or whenever I meet someone new who doesn’t know my background to my stoma, I…
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“Does having IBD scare you?”
Read MoreLet me take you back down memory road to the day after I was diagnosed with Crohns disease. “I sat on my hospital bed, in the new ward, waiting for…
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“How important is hydration with a stoma?”
Read MoreSummer can be a challenging time for ostomates. The hot weather can cause some issues if you’re not aware of them. Without parts of the bowel to absorb alot of…
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“Are supplements helpful in IBD?”
Read MoreMore than half those with IBD have deficiencies in vitamins & minerals and we get most of these from the food we eat. Clemmie Oliver of the NALM Clinic said…
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“What are infusions like?”
Read MoreIntravenous simply means ‘into a vein’. Medicines and other fluids can be given directly via a vein into your bloodstream. A fine tube, called a cannula, is inserted into a…
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“What does an endoscopy feel like?”
Read MoreBasic definition: An endoscopy is a procedure where organs inside your body are looked at using an instrument called an endoscope. An endoscope is a long, thin, flexible tube that…
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“Is mental health overlooked in IBD?”
Read MoreHow often when you get asked “how are you?” do you answer with regards to your mental or emotional health? I get it, it is tough to really answer with…
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World IBD Day – Debunking IBD Myths
Read MoreBack in February, I wrote about ‘Assumptions About IBD & Stomas‘ where I discussed how there are many assumptions and myths surrounding IBD and having a stoma. Assumptions are usually…
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“How does sleep affect IBD?”
Read MoreStruggling with sleep is a very common problem. So common in fact that almost one third of the UK population have insomnia – the inability to sleep at night. For…
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“How do you know when you’re flaring?”
Read MoreI’ll admit this openly, but flare-ups used to scare the heck out of me. After I was officially diagnosed in late 2011 I had several bad flare-ups back to back,…
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“What is life like after stoma surgery?”
Read MoreYou’re decided to have stoma surgery, but what now? Lots of thoughts, questions and worries cross your mind, and despite your nurses giving you lots of medical advice, you want…
![⚡️IS A STOMA A FIX OR CURE FOR IBD? 💭
"Does that [my stoma] mean you're fixed now?"
"Has it cured you?"
"I bet your bag means all your problems are fixed"
"What do you mean it hasn't cured you?"
I've had these things said to me, at one time or another.
All assuming that me having a stoma means my IBD has magically been fixed by surgery, that my illness has been removed and I am cured.
NEWSFLASH - there is NO cure for IBD.
I *still* have issues, despite living with a stoma.
I still require medication to manage my disease.
My Crohns disease can still come back, pop up to say hi at any point, anywhere [mouth to anus, or what is left of it]
So no, having a stoma does not mean my IBD is cured.
It fixed a particular issue I had 5 years ago. One which has not reoccured but does not rule it out from happening again.
For the most part, stoma life is so much better than colon life. Mine was a disaster and I was glad to be rid of it. But it was not an easy decision or one I made lightly. Like anyone else with a stoma will tell you.
You can read the full blog post via my profile @louisehelenhunt
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