• “How do you know when you’re flaring?”

    I’ll admit this openly, but flare-ups used to scare the heck out of me. After I was officially diagnosed in late 2011 I had several bad flare-ups back to back, which always led to me being hospitalised. Luckily, that doesn’t happen so often now, because I have become better at reading my own body’s warning […]

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  • “Will you always need check-ups for your IBD?”

    Short answer: Yes. Long answer: Yes but here is why: Getting diagnosed with IBD for most is a great relief. It ends the months, even years, of needing answers but them being dismissed or ignored. But diagnosis is just the first step in a lifetime of appointments, scans, procedures and consults with a specialist team […]

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  • “Does caffeine affect your IBD?”

    Where would I be without my morning cup of coffee? Probably still in bed and probably still asleep. It’s been used for decades as a popular morning beverage to get us up, awake, alert and ready for a new day. We then added it to drinks to keep us full of energy during the day, […]

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  • Never Give Up Hope

    Every October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked up to an IV stand. The first time was October 2013, when I moved from Humira to Infliximab. Going from an at-home self-injection to a […]

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  • Hernias & Stomas

    I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You are more susceptible to them now”. I was four or five days post op and I just nodded along. It was never a big worry […]

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  • Remaining Strong in the Face of Chronic Illness

    “Just because you carry it well, does not mean it’s not heavy” I find myself thinking about this quote more and more frequently these days. Not sure if it’s lockdown impacting on my brain or the fact that life has been forever changed by the pandemic , but there is something to be said about […]

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  • Having Major Surgery During a Pandemic

    I know almost all of us did not expect nor predict that 2020 would be how it has been thus far. It has been without a doubt the most challenging year for a very long time. However, when you have a chronic illness, you go through periods where you are indeed isolated and out of […]

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  • Being and Staying Positive

    “May the flowers remind us why the rain was necessary” “One day at a time” “Be gentle with yourself, you’re doing the best you can” We hear ‘positive‘ quotes all day long in the chronic illness community. From helping us get through a tough day, to reminding someone else they are stronger than their mind […]

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