• Chronic Illness Admin

    It takes a mammoth amount of energy, time and effort to organise chronic illness life. Throughout all my years with IBD it has been a barrage of appointments, procedures, medications and conversations about my health. It’s sort of why I started writing my blog because I was forgetful – medication side effect and just being […]

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  • “How do you know when you’re flaring?”

    I’ll admit this openly, but flare-ups used to scare the heck out of me. After I was officially diagnosed in late 2011 I had several bad flare-ups back to back, which always led to me being hospitalised. Luckily, that doesn’t happen so often now, because I have become better at reading my own body’s warning […]

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  • “Will you always need check-ups for your IBD?”

    Short answer: Yes. Long answer: Yes but here is why: Getting diagnosed with IBD for most is a great relief. It ends the months, even years, of needing answers but them being dismissed or ignored. But diagnosis is just the first step in a lifetime of appointments, scans, procedures and consults with a specialist team […]

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  • “Does caffeine affect your IBD?”

    Where would I be without my morning cup of coffee? Probably still in bed and probably still asleep. It’s been used for decades as a popular morning beverage to get us up, awake, alert and ready for a new day. We then added it to drinks to keep us full of energy during the day, […]

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  • Never Give Up Hope

    Every October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked up to an IV stand. The first time was October 2013, when I moved from Humira to Infliximab. Going from an at-home self-injection to a […]

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  • Hernias & Stomas

    I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You are more susceptible to them now”. I was four or five days post op and I just nodded along. It was never a big worry […]

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