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“Is having a stoma a fix or cure for IBD?”
Read MoreIf I had a pound for every time I got asked this immediately after surgery or whenever I meet someone new who doesn’t know my background to my stoma, I swear, I’d be RICH. Let’s go through this question methodically, shall we? What is a stoma? A stoma is an opening in the abdominal wall […]
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“Does having IBD scare you?”
Read MoreLet me take you back down memory road to the day after I was diagnosed with Crohns disease. “I sat on my hospital bed, in the new ward, waiting for…
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Chronic Illness Admin
Read MoreIt takes a mammoth amount of energy, time and effort to organise chronic illness life. Throughout all my years with IBD it has been a barrage of appointments, procedures, medications…
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Reflecting on 2021 – The Six Month Update
Read MoreInspired and an follow on from my 2020 post “Reflecting on 2020 – The Six Month Update“ End of June – what? The second half of the year but for me…
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“How important is hydration with a stoma?”
Read MoreSummer can be a challenging time for ostomates. The hot weather can cause some issues if you’re not aware of them. Without parts of the bowel to absorb alot of…
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“Are supplements helpful in IBD?”
Read MoreMore than half those with IBD have deficiencies in vitamins & minerals and we get most of these from the food we eat. Clemmie Oliver of the NALM Clinic said…
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“What are infusions like?”
Read MoreIntravenous simply means ‘into a vein’. Medicines and other fluids can be given directly via a vein into your bloodstream. A fine tube, called a cannula, is inserted into a…
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“What does an endoscopy feel like?”
Read MoreBasic definition: An endoscopy is a procedure where organs inside your body are looked at using an instrument called an endoscope. An endoscope is a long, thin, flexible tube that…
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“Is mental health overlooked in IBD?”
Read MoreHow often when you get asked “how are you?” do you answer with regards to your mental or emotional health? I get it, it is tough to really answer with…
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World IBD Day – Debunking IBD Myths
Read MoreBack in February, I wrote about ‘Assumptions About IBD & Stomas‘ where I discussed how there are many assumptions and myths surrounding IBD and having a stoma. Assumptions are usually…
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Exploring the Emotional Complexity of IBD Surgery
Read MoreAs I come to the five year anniversary of my first IBD surgery, what exactly can I share with you, that isn’t already out there? What can I tell you…
![⚡️IS A STOMA A FIX OR CURE FOR IBD? 💭
"Does that [my stoma] mean you're fixed now?"
"Has it cured you?"
"I bet your bag means all your problems are fixed"
"What do you mean it hasn't cured you?"
I've had these things said to me, at one time or another.
All assuming that me having a stoma means my IBD has magically been fixed by surgery, that my illness has been removed and I am cured.
NEWSFLASH - there is NO cure for IBD.
I *still* have issues, despite living with a stoma.
I still require medication to manage my disease.
My Crohns disease can still come back, pop up to say hi at any point, anywhere [mouth to anus, or what is left of it]
So no, having a stoma does not mean my IBD is cured.
It fixed a particular issue I had 5 years ago. One which has not reoccured but does not rule it out from happening again.
For the most part, stoma life is so much better than colon life. Mine was a disaster and I was glad to be rid of it. But it was not an easy decision or one I made lightly. Like anyone else with a stoma will tell you.
You can read the full blog post via my profile @louisehelenhunt
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