About
- My Story
  - My IBD Story
  - My Ostomy Story
- Get In Touch
Work with Me
Blog
Catagories
Information
Store

Blog

Building Good Relationships with your Medical & Surgical Teams

Read more
How to Make the Most of your F2F, Telephone & Virtual Appointments

Read more
Let’s Talk About: Infusions in IBD

Read more
Misconceptions about Living with a Chronic Illness

Read more
PTSD & Medical Trauma

Read more
Why Are PICC Lines used in IBD?

Read more
Things I now Love about Living with a Stoma

Read more
When might you need a Liver Biopsy with IBD?

Read more
Being Organised when you have IBD

Read more

1 2 3 … 42

Set myself a very high reading challenge at the be

Set myself a very high reading challenge at the beginning of this year: one book a week. The last three months I’ve taken up a new hobby - yes, I am *that* sort of person, multiple things on the go - so it’s been a lot slower than that.

But I have read:

56 Days by Catherine Ryan Howard
Home Cooking by Laurie Colwin
Book Lovers by Emily Henry
The Sinner by Tess Gerristen
Faking Friends by Jane Fallon
The Serial Killers Wife by Alice Hunter
One Night on The Island by Josie Silver
Maybe Someday by Colleen Hoover

I wonder what I’ll read in the next three months? 💭

#bookstagram #readingchallenge #goodreadschallenge #goodreads #booktok

Someone commented last week saying why did I conti

Someone commented last week saying why did I continue to update my health, why couldn’t I do it when it was all over and done with?

Several things are wrong here:

1) First and most importantly, if you don’t like the updates, click that unfollow or mute button!
2) My primary health condition is chronic. That means LIFE LONG, it is here to stay.
3) There is no end point for my health. It is my journey and I share it because I choose to. If it helps one person not feel alone, it is worth all these ⤴️ stupid comments.

The ‘over and done with’ part of this comment really did get to me. It beggars belief what some people will say without thinking about it beforehand.

I find showing the health side of my life helps me process chronic illness life. I’m not wallowing in the negative but it’s not easy navigating all of this.

-
-
-
#adventureswithachronicillness
#ibdawareness
#ostomyawareness
#invisibleillnessawareness
#chronicillness

𝙄 𝙙𝙤𝙣'𝙩 𝙠𝙣𝙤𝙬 𝙬𝙝𝙤 𝙣𝙚𝙚𝙙𝙨 𝙩𝙤 𝙧𝙚𝙖𝙙 𝙩𝙝𝙞𝙨 𝙩𝙤𝙙𝙖𝙮, 𝙗𝙪𝙩 𝙩𝙝𝙚𝙧𝙚 𝙞𝙨 𝙣𝙤 𝙧𝙞𝙜𝙝𝙩 𝙬𝙖𝙮 𝙤𝙛 𝙡𝙞𝙫𝙞𝙣𝙜 𝙬𝙞𝙩𝙝 𝙖 𝙘𝙝𝙧𝙤𝙣𝙞𝙘 𝙞𝙡𝙡𝙣𝙚𝙨𝙨⁠
⁠
Simple and straightforward, there is no right or wrong way to live with your chronic illness.⁠
⁠
If the phrase 'you do you' was meant for anything, let it be meant for this; only you know what is best for your body. Take on board the advice from your medical team - like don't ignore major or critical symptoms - but follow your gut. ⁠
⁠
[𝘴𝘰𝘮𝘦𝘸𝘩𝘢𝘵 𝘪𝘳𝘰𝘯𝘪𝘤 𝘧𝘰𝘳 𝘥𝘪𝘨𝘦𝘴𝘵𝘪𝘷𝘦 𝘥𝘪𝘴𝘰𝘳𝘥𝘦𝘳𝘴, 𝘣𝘶𝘵 𝘸𝘩𝘢𝘵𝘦𝘷]⁠
⁠
YOU live with your condition.⁠
YOU know what you need.⁠
YOU know when something isn't right.⁠
YOU also know when it's going right, so follow that feeling. ⁠
⁠
⁠
I do not dictate anyone else's journey with a chronic illness, and no one dictates mine ✌🏻⁠
-⁠
-⁠
-⁠
#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

𝑰𝒕'𝒔 𝒆𝒂𝒔𝒊𝒆𝒓 𝒕𝒐 𝒔𝒂𝒚 𝑰'𝒎 𝒇𝒊𝒏𝒆, 𝒃𝒆𝒄𝒂𝒖𝒔𝒆 𝒘𝒉𝒂𝒕 𝒂𝒓𝒆 𝒚𝒐𝒖 𝒈𝒐𝒊𝒏𝒈 𝒕𝒐 𝒅𝒐 𝒂𝒃𝒐𝒖𝒕 𝒊𝒕 𝒊𝒇 𝑰'𝒎 𝒏𝒐𝒕?⁠
⁠
It's almost like autopilot to say "I'm fine" when I get asked if I am okay. Quite alot of the time, I am actually doing okay, but when I'm not okay, I still tend to say "I'm fine" - why?⁠
⁠
It is easier, for sure.⁠
Easier for me to keep my health, sometimes, to myself.⁠
⁠
I've had IBD for a long time now, I know when I'm starting to slip and I get steps in place to help me out. So when I say "I'm fine" but unwell, it's because I've already had a health conversation or two and I'm just protecting myself.⁠
⁠
This week I've got two procedures - a pelvic MRI and an ileoscope - both of which have some anxiety for me. Even more so this time; they are close together, I am feeling some pain (partly why these are happening) and I'm stressing about working around them, organising access of my port for one as well as the whole 'what if they find something I need surgery or more medication for?" which accompanies me for most of these things. ⁠
⁠
So yeah, saying all those thoughts and feelings to someone outside of my support group is complex. So being 'fine' is so much easier to be, to some people.⁠
-⁠
-⁠
-⁠
#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

Embroidery appreciation in full swing! In the pa

Embroidery appreciation in full swing!

In the past fourteen months I’ve complete twelve hoops and each time I still revel in the joy and pride I feel ♥️ I have so many more to complete but I wouldn’t have it any other way.

#embroidery #embroideryart #embroideryhoop #embroiderydesign #craftersgonnacraft

Does anybody else feel like they need this?⁠ ⁠

Does anybody else feel like they need this?⁠
⁠
Right now, things are hard. And not because anything is 'wrong' but I'm out doing my normal stuff; it's been a long time since I had some stable weeks & months. I'm trying to enjoy them because I know they might not last but I'm tired. A good tired, but tired, nonetheless. ⁠
⁠
⁠
-⁠
-⁠
-⁠
#adventureswithachronicillness #ibdawareness #ostomyawareness #invisibleillnessawareness #chronicillness

Disclosure
Privacy Policy

© 2022. Created By Lucid Themes