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Blog

Awareness Week – Change in Appearance

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“What does fatigue feel like?”

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“Is it tough taking lots of medications?”

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“What does surgery feel like?”

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Vedolizumab Subcutaneous Injections

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Examinations Under Anaesthesia

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#2021HOMESTRETCH

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Silicone – Is this the next Frontier in Stoma Products?

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“Does your scar or stoma ever hurt?”

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1 2 3 4 5 … 42

Does anybody else feel like they need this?⁠ ⁠

Does anybody else feel like they need this?⁠
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Right now, things are hard. And not because anything is 'wrong' but I'm out doing my normal stuff; it's been a long time since I had some stable weeks & months. I'm trying to enjoy them because I know they might not last but I'm tired. A good tired, but tired, nonetheless. ⁠
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#adventureswithachronicillness #ibdawareness #ostomyawareness #invisibleillnessawareness #chronicillness

I've been humbled this week as I know several frie

I've been humbled this week as I know several friends going through tough medical challenges.⁠
⁠
𝚁𝚎𝚙𝚎𝚊𝚝 𝚊𝚏𝚝𝚎𝚛 𝚖𝚎: 𝙸 𝚌𝚊𝚗 𝚍𝚘 𝚝𝚑𝚒𝚜⁠
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I'm thinking back to my tough medical challenges; ⁠
⚪ those first few days after stoma surgery⁠
⚪ the painful attempts at cannulas⁠
⚪ needing TPN⁠
⚪ getting used to living with a bag on my belly
⚪ wound problems... all of it. ⁠
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And beyond surgery, it doesn't stop. It doesn't end, it just fades away; you get better at not letting it be so forefront of your mind.⁠
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But the magical thing about it continuing is that I know I can do it, I can get through it. ⁠
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And getting through it means I can share my wisdom with others. And if that's the final aspect of feeling comfortable with my own medical conditions and how I now live my life, I wholeheartedly accept that. 🏅⁠
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My inbox is always open.⁠
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#adventureswithachronicillness #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd #ostomyawareness #nocolonstillrollin #ostomylife #ostomywarrior #stomastigma #nocolonclub #barbiebuttgang #ostomyawareness

I'm joking but also, not ☠️⁠ ⁠ -⁠ -⁠ -

I'm joking but also, not ☠️⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

Today will be the first time I am visiting the hos

Today will be the first time I am visiting the hospital after the restrictions have completely lifted for masks in healthcare settings in the UK.⁠
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I'm in two minds today about wearing one - it's going to be 32C by the time I get there this afternoon - but I also want to protect myself and those around me. ⁠
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I'm attending a surgical appointment and will be in close contact with my surgeon. I might not be traditionally 'unwell' at the moment but I'm there for a very real and problematic reason. ⁠
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It's going to be super weird, seeing faces again, after so long. I always carry one, so I can put it on if I feel vulnerable in different situations. ⁠
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So this is just a reminder, no matter what others might think or say; ⁠
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𝙄𝙩 𝙞𝙨 𝙞𝙨 𝙤𝙠𝙖𝙮 𝙩𝙤 𝙙𝙤 𝙬𝙝𝙖𝙩 𝙞𝙨 𝙗𝙚𝙨𝙩 𝙛𝙤𝙧 𝙮𝙤𝙪⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd

🗣️ NEW BLOG POST KLAXON 🚨📣⁠ ⁠ Hospi

ɪ ᴄᴀɴ'ᴛ ᴛᴇʟʟ ɪꜰ ɪᴛ'ꜱ ᴋɪʟ

ɪ ᴄᴀɴ'ᴛ ᴛᴇʟʟ ɪꜰ ɪᴛ'ꜱ ᴋɪʟʟɪɴɢ ᴍᴇ ᴏʀ ᴍᴀᴋɪɴɢ ᴍᴇ ꜱᴛʀᴏɴɢᴇʀ⁠
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I'll be honest, I sometimes can't quite tell the difference.⁠
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I'd like to think that almost everything ive experienced with my chronic illnesses has made me stronger but in some situations, they have killed me. ⁠
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Colon? ❌⁠
Rectum? ❌⁠
Abdominal wall? ❌⁠
Ovarian cysts? ❌⁠
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I say this with a lot of dark humour but chronic illness is no joke, really. ⁠
Sometimes the things we have to go through - or in some cases, choose to go through - do harm us. They do physical and mental damage. And neither of those can be overlooked. ⁠
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And they should not be dismissed, no matter how long ago it was, how healed you might be from them; it's never 100% gone, a line drawn under it, perfect life goes on. Health, especially chronically ill health, does not go like that.⁠
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So if you can't tell if it's killing you or making you stronger, you're not alone. ⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohndisease ⁠
#crohns ⁠
#invisibleillnessawareness ⁠
#mentalhealth ⁠
#mentalhealthawareness ⁠
#mentalhealthmatters ⁠
#chronicillness ⁠
#inflammatoryboweldisease

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