• “What does an endoscopy feel like?”

    Basic definition: An endoscopy is a procedure where organs inside your body are looked at using an instrument called an endoscope. An endoscope is a long, thin, flexible tube that has a light and camera at one end. Images of the inside of your body are shown on a television screen. Endoscopes can be put […]

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  • Hernias & Stomas

    I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You are more susceptible to them now”. I was four or five days post op and I just nodded along. It was never a big worry […]

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  • Having Major Surgery During a Pandemic

    I know almost all of us did not expect nor predict that 2020 would be how it has been thus far. It has been without a doubt the most challenging year for a very long time. However, when you have a chronic illness, you go through periods where you are indeed isolated and out of […]

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  • Discharge Euphoria

    “You can go home today”   The most joyful words that can be uttered during a morning ward round when you have been in hospital for anything more than a couple days. You think back to your home and all the wonderful lovely things that await you – a soft bed. A shower! Fresh pjs […]

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  • Post Surgery Check Up

    The waiting game Travelled to Stamford this morning to check in with my surgeon following my operation, six weeks and five days ago. I can hardly believe its the middle of May, let alone comprehend that it’s been that long since my surgery back in late March. I have seen my consultant since being discharge […]

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  • Surgery Anniversary

    I’ve been thinking alot lately about surgery and it’s sometimes negative reputation and impact on the chronically ill.   When I was first diagnosed with Crohn’s disease and we were discussing treatment options for controlling it, I was positive that I could fight this without the need of surgery. I remained feeling that particular way […]

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  • One Month Post Surgery

    Four weeks, twenty-eight days.  Admittedly, I did write my last update – you can read it here – abit later than I’d originally planned but still, to think it’s been a month since surgery is just mind blowing. During these last two weeks I learnt a heck of alot more! Some brief highlights: I got myself off […]

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  • Two Weeks Post Surgery

    Seems like only yesterday I was counting backwards from four to be put under for my Proctectomy. But here we are, fourteen days post op and it’s been a weird and wonderful ride. I spent eight days on the ward, learning to manage my pain and my wounds. I am very grateful for my stoma […]

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  • What’s in my Hospital Bag?

    It’s been almost three years since I had a planned admission to hospital, and a little over a year that I’ve had without an admission at all. So, planning and packing my hospital bag was a quite daunting task. What would I need? How much would I be able to take with me? How was I […]

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  • Why? My Proctectomy Explained

    Background: In 2016 I underwent two operations for my Crohn’s Disease. The first was a Right Hemicolectomy in May, followed by a Subtotal Colectomy with Ileostomy in August. My first surgery was to remove a stricture that was causing all of my then IBD symptoms. It had been unresolved by medication, so a joint decision […]

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