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Living with an Ostomy

all posts relating to living with a ostomy, day to day. Including leaks, ostomy supplies, bag changes, being out in public, managing output.

Things I now Love about Living with a Stoma

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World Ostomy Day

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“What does a blockage feel like?”

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Year Five: Stoma Life

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“What happens in a stoma review?”

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“How important is hydration with a stoma?”

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“What is life like after stoma surgery?”

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Debunking Stoma Myths

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“How different are scans when you have a bag?”

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𝗜𝗻 𝘁𝗵𝗲 𝗺𝗶𝗱𝗱𝗹𝗲 𝗼𝗳 𝗲𝘃𝗲𝗿𝘆 𝗱𝗶𝗳𝗳𝗶𝗰𝘂𝗹𝘁𝘆 𝗹𝗶𝗲𝘀 𝗼𝗽𝗽𝗼𝗿𝘁𝘂𝗻𝗶𝘁𝘆⁠
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Ostomy surgery felt like the worst possible outcome when medications began failing.⁠
And after coming away from a resection without one, I felt so much relief. ⁠
But it was in the very darkest moments of the Summer of 2016, I opted for a stoma over trialling more medication to 'fix' a deep and nasty flare. ⁠
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Ostomy surgery was probably one of the most challenging things I've ever done. I've lived abroad and attended university hundreds of miles away from home but having my colon out and readjusting to a new life was really hard. ⁠
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Online and offline, who I am here today began on that hospital admission. It has given me many opportunities, adventures, experiences and reflections, it's hard to stay too mad at my body when it decides to play up or act out. ⁠
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#adventureswithachronicillness ⁠
#ostomyawareness ⁠
#nocolonstillrollin ⁠
#ostomylife ⁠
#ostomywarrior ⁠
#stomastigma ⁠
#nocolonclub ⁠
#barbiebuttgang

𝔻𝕠𝕟'𝕥 𝕨𝕒𝕚𝕥 𝕗𝕠𝕣 𝕖𝕧𝕖𝕣𝕪𝕥𝕙𝕚𝕟𝕘 𝕥𝕠 𝕓𝕖 𝕡𝕖𝕣𝕗𝕖𝕔𝕥 𝕓𝕖𝕗𝕠𝕣𝕖 𝕪𝕠𝕦 𝕕𝕖𝕔𝕚𝕕𝕖 𝕥𝕠 𝕖𝕟𝕛𝕠𝕪 𝕪𝕠𝕦𝕣 𝕝𝕚𝕗𝕖⁠
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If there is anything I'd tell my younger self, it would be don't wait for perfection.⁠
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ɴᴏᴛʜɪɴɢ in life is perfect, and it is never ᴇᴠᴇʀ perfect on the first try. Heck, even with tons of experience, perfection is hard to achieve and dangerous to pursue. ⁠
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So do what makes you happy, and don't postpone joy and your passions in the search for it being perfect. It won't be. But it will feel so much better without that nagging voice in your head telling you 'ᴛʜɪꜱ ɪꜱɴ'ᴛ ʀɪɢʜᴛ' or 'ɪ'ᴍ ꜱᴛɪʟʟ ɴᴏᴛ ᴛʜᴇ ʙᴇꜱᴛ'.⁠
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Be fallible and real. ⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#ostomyawareness ⁠
#invisibleillnessawareness ⁠
#chronicillness

𝙄'𝙫𝙚 𝙜𝙤𝙩𝙩𝙚𝙣 𝙩𝙝𝙧𝙤𝙪𝙜𝙝 𝙧𝙤𝙪𝙜𝙝 𝙨𝙞𝙩𝙪𝙖𝙩𝙞𝙤𝙣𝙨 𝙗𝙚𝙛𝙤𝙧𝙚 𝙖𝙣𝙙 𝙄 𝙬𝙞𝙡𝙡 𝙖𝙜𝙖𝙞𝙣.⁠
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If you saw my stories on Thursday / Friday, I've been dealing with another butt abscess situation. ⁠
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I was able to get into see my wonderful surgeon who made sure it does not require an urgent or emergent I&D - Incision and Drainage 🤢 - and at the moment it isn't. Phew! I have, unfortunately, got to wait for it to 'pop'. I'm taking some antibiotics to help lower the risk of a possible infection, but damn, it's tough. ⁠
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I've had about four of these types of abscesses the last few years and it's a 'nice' addition to the ol' Crohns disease in my gut. And by now, I sort of know the drill. I can do all the things in the world to help 'prevent' them but it seems I'm just sort of prone to them.⁠
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Getting mentally prepared for needing a little surgery is still the biggest 'fake' upheaval when it comes to managing my health, and I know it would be much harder if I didn't have such a great support system and flexibly working environment. ⁠
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Today, it did pop, however. ⁠
On new PJs. ⁠
At 6.30 am.⁠
Am I relieved? Sort of 🤷🏼‍♀️ It's still hella painful but better than it was. But I also know it could be just the beginning...🤞🏻⁠
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#adventureswithachronicillness ⁠
#ibdawareness ⁠
#crohnsdisease ⁠
#crohns ⁠
#ibdwarrior ⁠
#invisibleillnessawareness ⁠
#chronicillness ⁠
#inflammatoryboweldisease ⁠
#letstalkibd ⁠
#abscesses

𝑌𝑜𝑢 𝑛𝑒𝑣𝑒𝑟 𝑘𝑛𝑜𝑤

𝑌𝑜𝑢 𝑛𝑒𝑣𝑒𝑟 𝑘𝑛𝑜𝑤 𝑤𝘩𝑜 𝑦𝑜𝑢 𝑎𝑟𝑒 𝘩𝑒𝑙𝑝𝑖𝑛𝑔 ♥️
#adventureswithachronicillness #wordsofwisdom #wordstoliveby #quoteoftheday #quotestoliveby

When it comes to how you manage your IBD or stoma,

When it comes to how you manage your IBD or stoma, it can be great to get advice and information so you can be armed with knowledge but 𝑦𝑜𝑢 ultimately decide what to do.

Someone will always have a negative or opposite opinion to you, on pretty much everything when it comes to health, especially chronic illness. Because it’s either ‘not real’, ‘it’s that bad’ or you’re ‘just not trying hard enough’

And out of all the things, you’ll probably remember the negative one over the many more positive ones.

𝑌𝑜𝑢𝑟 𝑙𝑖𝑓𝑒 𝑖𝑠𝑛'𝑡 𝑦𝑜𝑢𝑟𝑠 𝑖𝑓 𝑦𝑜𝑢 𝑎𝑙𝑤𝑎𝑦𝑠 𝑐𝑎𝑟𝑒 𝑤𝘩𝑎𝑡 𝑜𝑡𝘩𝑒𝑟𝑠 𝑡𝘩𝑖𝑛𝑘

Caring about what others think about you isn’t a bad thing but letting them take over who you are and what you choose to do, is.

𝑌𝑜𝑢 decide your life. 𝑌𝑜𝑢 choose what to do and how to do it. Even in health care, 𝑦𝑜𝑢 have a choice, your opinion 𝑚𝑎𝑡𝑡𝑒𝑟𝑠.

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#adventureswithachronicillness
#ibdawareness
#crohnsdisease
#crohns
#ibdwarrior
#invisibleillnessawareness
#chronicillness
#inflammatoryboweldisease
#letstalkibd

𝐶𝘩𝑟𝑜𝑛𝑖𝑐 𝑖𝑙𝑙𝑛𝑒𝑠𝑠 𝑖𝑠𝑛'𝑡 𝑎 𝑤𝑒𝑎𝑘𝑛𝑒𝑠𝑠.
𝐿𝑖𝑣𝑖𝑛𝑔 𝑤𝑖𝑡𝘩 𝑖𝑡, 𝑡𝑢𝑟𝑛𝑖𝑛𝑔 𝑢𝑝 𝑎𝑛𝑑 𝑑𝑜𝑖𝑛𝑔 𝑠𝑡𝑢𝑓𝑓 𝑤𝑖𝑡𝘩 𝑎 𝑐𝘩𝑟𝑜𝑛𝑖𝑐 𝑖𝑙𝑙𝑛𝑒𝑠𝑠 𝑡𝑎𝑘𝑒𝑠 𝑎 𝑠𝑡𝑟𝑒𝑛𝑔𝑡𝘩 𝑚𝑜𝑠𝑡 𝑤𝑖𝑙𝑙 𝑛𝑒𝑣𝑒𝑟 𝑘𝑛𝑜𝑤.

Hi, just dropping in to remind you that having IBD is not a weakness. It’s a superpower. It’s a strength that you didn’t ask for, not sure why you have it but you’ll be damned if it’s going to stop you.

You are a warrior. Even when you don’t feel like one.
Don’t ever underestimate yourself and your own strength.

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#adventureswithachronicillness
#ibdawareness
#crohnsdisease
#crohns
#ibdwarrior
#invisibleillnessawareness
#chronicillness
#inflammatoryboweldisease
#letstalkibd

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