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Never Give Up Hope
Read MoreEvery October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked…
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Hernias & Stomas
Read MoreI remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You…
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Remaining Strong in the Face of Chronic Illness
Read More“Just because you carry it well, does not mean it’s not heavy” I find myself thinking about this quote more and more frequently these days. Not sure if it’s lockdown…
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Being [Unexpectedly] Medication Free for a Year
Read MoreI remember vividly two days that began my journey with Vedolizumab; “she returned my call, the long and short of it being that “no, this isn’t working“; agreeing with my…
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Having Major Surgery During a Pandemic
Read MoreI know almost all of us did not expect nor predict that 2020 would be how it has been thus far. It has been without a doubt the most challenging…
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Life Insurance & IBD
Read MoreDisclaimer: Guest post Award-winning life insurance broker, Reassured, explain what information you’ll need to provide when applying for life insurance with Crohn’s disease and how the condition may have an impact…
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Being and Staying Positive
Read More“May the flowers remind us why the rain was necessary” “One day at a time” “Be gentle with yourself, you’re doing the best you can” We hear ‘positive‘ quotes all…
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Diagnosis Day
Read MoreIn the Autumn of 2011, I spent hardly anytime online. In fact, I spent several weeks on several occasions, battling my defunct body in the hospital. I remember a lot…
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Same Ocean, Different Boats
Read MoreSometimes, it can feel as if you are all alone with your problems. It is easy to compare yourself to others when social media is and can be a highlight…
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Stoma Life – YEAR FOUR
Read MoreWhat I’ve Learnt and Achieve in the Last Twelve Months with my Ostomy Year Four with Priscilla has been quiet, compared to other years. She settled down into a new routine…
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Has my Bag Improved my IBD?
Read MoreIt is the week before surgery. I knew the closer we got to my date, I would begin pondering things. August has a tendency to bring up some pretty miserable…
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The Perfect Storm
Read MoreInspired by writingfortheloveofit – Perfect Storm which can be found here. “Have you ever thought about your life as the perfect storm? Let’s think about it for a moment. A “perfect…
Latest Posts
My lovely surgeon has got my EUA booked in for next Thursday! Had a call for booking the plethora of pre op stuff that’s comes into it too - pre op consult and covid test (+ isolation)
😲🥴🤭
Spent the last 90 minutes coordinating, updating and checking my diaries. Yes, DIARIES.
Study. Health. Appointments. Reminders. Household planning.
For the next couple weeks I know what I’m doing! A good thing too, with upcoming surgery 😉