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  • Eating with an Ostomy
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Experimenting and Exploring Food with an Ostomy

Inspired and a follow up to my 2016 post “My Tips for Eating with an Ostomy” Disclaimer: This information is based on my own personal experiences. Please remember that each…

Read More
  • Crohns
  • IBD Impact

I AM SCARED, despite being in such a joyous season

December always feels like the most scary month for me. I have no triggers or flashbacks for this month in particular, but there is such a drive away from routine…

Read More
  • Crohns
  • IBD Impact
  • Medication

Never Give Up Hope

Every October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked…

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  • Articles
  • Crohns

Flare Up Management

How to make decisions to help tame the IBD monster NB: This had been intended to be written before we knew anything about coronavirus (COVID-19) so there has been the…

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  • Crohns
  • IBD Impact
  • Surgery

Hernias & Stomas

I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You…

Read More
    • Living with an Ostomy
    • Ostomy

    A Guide to Summer with an Ostomy

    Inspired and an follow on from my 2018 post “Surviving the Summer with an Ostomy: A Guide” Disclaimer: This information is based on my own personal experience since my ostomy surgery…

    Read More
    • Crohns
    • Ramblings & Musings

    Frustration: When nothing feels like ‘good news’

    Inspired by my 2019 post “Pain: When does Acute turn into Chronic?“ The shock on my face when I was told I was needed at SAU – our Surgical Assessment…

    Read More
    • IBD Achievements
    • Milestones

    Reflecting on 2020 – The Six Month Update

    Inspired and an follow on from my 2019 post “Reflecting on 2019 – The Six Month Update” Gosh, it feels as if it’s taken a long time to get to…

    Read More
    • Crohns
    • IBD Impact

    The Mental Struggles of Chronic Illness

    I’ve thrown alot of curve balls lately. So many. Too many to count. I secretly thought this lock down malarkey was going to be a breeze – in simple terms,…

    Read More
    • Articles
    • Ostomy

    What is Convexity?

    Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool.…

    Read More
    • Articles
    • Crohns
    • Eating with an Ostomy
    • IBD Impact
    • Ostomy

    Fibre with IBD

    Hands up who has been on the low residue diet in the months after diagnosis or surgery? There would be very few people with their hands down because it has…

    Read More
    • Crohns
    • IBD Impact
    • Life Lately

    Life Lately | Lockdown Update

    There is something else to be said about trusting your guts… I think if I trusted mine, I would be in serious trouble. But if you look at abit further,…

    Read More
    • Mental Health

    Coping with Anxiety While in Isolation

    We are in unpresented times. But dealing with anxiety in isolation is not unpresented. Anxiety affects everyone differently and can be brought on by different situations or experiences. It is…

    Read More
    • Crohns
    • IBD Impact

    Growing Through your Diagnosis

    What’s nice about being an adult and living with IBD is making all your own medical decisions.  I remember sitting in my hospital bed and being given my morning medication…

    Read More
Newer Posts 1 2 3 4 5 … 39 Older Posts

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Welcome to YoungCrohns: Adventures with a Chronic Illness.

I’m Louise; a passionate advocate and patient of IBD as well as a coffee addict who loves a good face mask and enjoying a good burger.

I love sharing my experiences and stories of living life with Crohn’s disease and a permeant ileostomy. 

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🎊 ANNOUNCEMENT 🎊 When this lockdown started 🎊 ANNOUNCEMENT 🎊

When this lockdown started, I started planning my blog work for 2021.

And the one thing I wanted to do was ‘share more’ while protecting my own health journey. It is something I’ve battled with for a long time but I finally had the answer:

WEEKLY NEWSLETTER 

Sharing more to me means writing more. And writing more means more blog posts, rehashing some old ones and generally being more open about the rollercoaster than can be IBD. It’s time to show to everyday, the ‘mundane’ and the ordinary. 

If you want to sign up, find this post in my linkinbio - it’ll be permanently there - and I look forward to you reading and learning a little more about me and IBD. 

xox
💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
It has been a tough ol’ year. It’s been full o It has been a tough ol’ year.
It’s been full of emotions, that swinging violently from positive to negative, from one day to the next.
These last few days have been even tougher.
But we are tough.
We are resilient.

We’ll push on through, because we didn’t just come this far, to only come this far 💜

✨✨✨
•
•
•

#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin

Latest Posts

  • Experimenting and Exploring Food with an Ostomy

    20/01/2021

  • I AM SCARED, despite being in such a joyous season

    08/12/2020

  • Never Give Up Hope

    01/12/2020

Louise HuntFollow

Louise Hunt
louisehelenhuntLouise Hunt@louisehelenhunt·
21h

A quick reminder:

You can sign up for my ⭐️NEW⭐️ weekly newsletter by subscribing below:

https://view.flodesk.com/pages/60042d30f6bebb02c1ab4b83

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louisehelenhuntLouise Hunt@louisehelenhunt·
23h

This week's blog post is all about exploring food after stoma surgery

Featuring:
⭐️ fears around food in IBD
⭐ common dietary restrictions
⭐my own helpful tips

Read the full article 👇🏻

https://youngcrohns.co.uk/blog/ostomy/experiementing-and-exploring-food-with-an-ostomy/

#adventureswithachronicillness

Reply on Twitter 1352194646471045121Retweet on Twitter 13521946464710451213Like on Twitter 13521946464710451215Twitter 1352194646471045121
louisehelenhuntLouise Hunt@louisehelenhunt·
23h

🎊 ANNOUNCEMENT 🎊 When this lockdown started, I started planning my blog work for 2021. And the one thing I wanted to do was ‘share more’ while protecting my own health journey. It is something I’ve battled with for a…

📸 https://www.instagram.com/p/CKTVONYgfUg/ via https://tweet.photo

Reply on Twitter 1352187763379077120Retweet on Twitter 1352187763379077120Like on Twitter 1352187763379077120Twitter 1352187763379077120
louisehelenhuntLouise Hunt@louisehelenhunt·
23h

Woke up at 3am with a RAGING headache. Took paracetamol and went back to sleep but it’s not gone.

Looked at my fluids and low and behold, the culprit. Just shows how important hydration is.

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louisehelenhuntLouise Hunt@louisehelenhunt·
20 Jan

Dinner: baked salmon with rice, stir fried veggies and homemade teriyaki sauce 🍴

Just going to show that having a stoma does not limit your food 🍱 horizons

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adventures with a chronic illness anxiety awareness blog series CBT cognitive behaviour therapy colorectal surgery corticosteroids counselling crohns disease December deficiency depression EIM extra intestinal manifestations health hernia repair IBD ibd awareness week ibd education life lately series Liver mental health methotrexate milestones MXT ostomy ostomy education ostomy supporting products ostomy uncovered parastomal hernia patient and public involvement PPI steroids stoma bag stoma blockage stoma life stomaversary the digestive system therapy the what and why the what and why series travel what is a stoma world ibd day
🎊 ANNOUNCEMENT 🎊 When this lockdown started 🎊 ANNOUNCEMENT 🎊

When this lockdown started, I started planning my blog work for 2021.

And the one thing I wanted to do was ‘share more’ while protecting my own health journey. It is something I’ve battled with for a long time but I finally had the answer:

WEEKLY NEWSLETTER 

Sharing more to me means writing more. And writing more means more blog posts, rehashing some old ones and generally being more open about the rollercoaster than can be IBD. It’s time to show to everyday, the ‘mundane’ and the ordinary. 

If you want to sign up, find this post in my linkinbio - it’ll be permanently there - and I look forward to you reading and learning a little more about me and IBD. 

xox
💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
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