Inspired and a follow up to my 2017 post “When Does Having an Ostomy Feel ‘Normal’?” and my 2019 post “This is Not My First Choice“ In a very similar vein to my post on ‘when does having an ostomy feel ‘normal’?’, today I want to talk about how it feels to have a stoma bag; and if it can ever fade into your subconscious. Now, #stoma101 – a stoma…
ostomy
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What is Convexity?
Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your SCN for medical advice. How does it work? One of the guiding…
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Fibre with IBD
Hands up who has been on the low residue diet in the months after diagnosis or surgery? There would be very few people with their hands down because it has become the go to diet for those suffering from active inflammation of their condition. Rightly so too; imagine the red, irritated and painful lining of your bowel as you allow rough and fibrous food through it. It isn’t going to…
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Ostomy Uncovered – How to Resize Your Baseplate
Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your SCN for medical advice. If you are looking for the entire…
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IBD, an Ostomy & Living with a Partner
Lately I’ve been reflecting on just how far I’ve come with my ostomy. I’ve been going without my medication – under the guidance of my IBD team – for a five months now and I’m feeling wistful. This hasn’t happened before. It’s unchartered territory for not only me, but my partner too. So just how do you juggle having IBD, an ostomy and living with a partner? Good question huh?…
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Travelling with IBD and a Stoma
Let’s get out there! For the majority of people who live with IBD, they have to travel. Either commuting to and from their jobs or taking trips; some will rely on the public transport network – trains, buses and coaches – to do this. While I have been a commuter in my own transport, the majority of my working life – and thus my time being diagnosed with Crohn’s Disease…
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Stoma Life – YEAR THREE
What I’ve Learnt and Achieve in the Last Twelve Months with my Ostomy Year Three with Priscilla has been one of calm in the mist of chaos. I made the gutsy decision to say goodbye to my sassy stump and hello to the Barbie butt club. My mental recovery has and still is the hardest part of living with IBD and a stoma. It is a hidden undercurrent and blinds me…
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This is Not My First Choice
Monday. This morning I ordered my stoma supplies with my delivery company and my prescription with my GP. By next week I’ll be organising and putting away another months worth of supplies to get me through August. August. My stoma was created three years ago this August. The day before my partners birthday – we celebrated my ‘new’ chapter and his life. I was always very comfortable with my stoma.…
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The Importance of an AUR – Appliance User Review
** Warning: this post contains details about my stoma, it’s appearance and output. If you would not like to read, please stop now ** That ‘aha!’ moment Lately, I’ve been experiencing some quite bad leaks with my stoma bag. What started off as just because I’d change my bag after two days of wear, it soon became daily and then multiple times a day. Sometimes, it would happen before I’d…