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“How important is hydration with a stoma?”
Read MoreSummer can be a challenging time for ostomates. The hot weather can cause some issues if you’re not aware of them. Without parts of the bowel to absorb alot of…
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“How different are scans when you have a bag?”
Read MoreThe most common way for IBD to diagnosed and monitored is via endoscopy. Unfortunately – or fortunately, depending on your viewpoint – a colonoscopy can only show so much of…
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A Guide to Summer with an Ostomy
Read MoreInspired and an follow on from my 2018 post “Surviving the Summer with an Ostomy: A Guide” Disclaimer: This information is based on my own personal experience since my ostomy surgery…
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IBD, an Ostomy & Living with a Partner
Read MoreLately I’ve been reflecting on just how far I’ve come with my ostomy. I’ve been going without my medication – under the guidance of my IBD team – for a…
![⚡️IS A STOMA A FIX OR CURE FOR IBD? 💭
"Does that [my stoma] mean you're fixed now?"
"Has it cured you?"
"I bet your bag means all your problems are fixed"
"What do you mean it hasn't cured you?"
I've had these things said to me, at one time or another.
All assuming that me having a stoma means my IBD has magically been fixed by surgery, that my illness has been removed and I am cured.
NEWSFLASH - there is NO cure for IBD.
I *still* have issues, despite living with a stoma.
I still require medication to manage my disease.
My Crohns disease can still come back, pop up to say hi at any point, anywhere [mouth to anus, or what is left of it]
So no, having a stoma does not mean my IBD is cured.
It fixed a particular issue I had 5 years ago. One which has not reoccured but does not rule it out from happening again.
For the most part, stoma life is so much better than colon life. Mine was a disaster and I was glad to be rid of it. But it was not an easy decision or one I made lightly. Like anyone else with a stoma will tell you.
You can read the full blog post via my profile @louisehelenhunt
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