• Facebook
  • Twitter
  • Instagram
  • Pinterest
  • About
    • My Story
      • My IBD Story
      • My Ostomy Story
    • Get In Touch
  • Work with Me
  • Blog
  • Catagories
    • IBD Achievements
    • Mental Health
    • Surgery
    • Ostomy
  • Information
    • Glossary
      • IBD Glossary
      • Ostomy Glossary
    • Resources – coming soon
    • IBD Research
      • PROFILE
    • Biological Treatments Explained
      • Biological Treatments Explained: Humira
      • Biological Treatments Explained: Infliximab
      • Biological Treatments Explained: Vedolizumab
    • #TOUGHCOOKIECLUB
    • Living with an Ostomy
    • Ostomy

    A Guide to Summer with an Ostomy

    Inspired and an follow on from my 2018 post “Surviving the Summer with an Ostomy: A Guide” Disclaimer: This information is based on my own personal experience since my ostomy surgery…

    Read More
    • Personal
    • Relationships

    IBD, an Ostomy & Living with a Partner

    Lately I’ve been reflecting on just how far I’ve come with my ostomy. I’ve been going without my medication – under the guidance of my IBD team – for a…

    Read More

Search

Welcome to YoungCrohns: Adventures with a Chronic Illness.

I’m Louise; a passionate advocate and patient of IBD as well as a coffee addict who loves a good face mask and enjoying a good burger.

I love sharing my experiences and stories of living life with Crohn’s disease and a permeant ileostomy. 

  • Facebook
  • Twitter
  • Instagram
  • Pinterest

Instagram

🎊 ANNOUNCEMENT 🎊 When this lockdown started 🎊 ANNOUNCEMENT 🎊

When this lockdown started, I started planning my blog work for 2021.

And the one thing I wanted to do was ‘share more’ while protecting my own health journey. It is something I’ve battled with for a long time but I finally had the answer:

WEEKLY NEWSLETTER 

Sharing more to me means writing more. And writing more means more blog posts, rehashing some old ones and generally being more open about the rollercoaster than can be IBD. It’s time to show to everyday, the ‘mundane’ and the ordinary. 

If you want to sign up, find this post in my linkinbio - it’ll be permanently there - and I look forward to you reading and learning a little more about me and IBD. 

xox
💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
It has been a tough ol’ year. It’s been full o It has been a tough ol’ year.
It’s been full of emotions, that swinging violently from positive to negative, from one day to the next.
These last few days have been even tougher.
But we are tough.
We are resilient.

We’ll push on through, because we didn’t just come this far, to only come this far 💜

✨✨✨
•
•
•

#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin

Latest Posts

  • Experimenting and Exploring Food with an Ostomy

    20/01/2021

  • I AM SCARED, despite being in such a joyous season

    08/12/2020

  • Never Give Up Hope

    01/12/2020

Louise HuntFollow

Louise Hunt
louisehelenhuntLouise Hunt@louisehelenhunt·
13h

Dinner: baked salmon with rice, stir fried veggies and homemade teriyaki sauce 🍴

Just going to show that having a stoma does not limit your food 🍱 horizons

Reply on Twitter 1352000101301039105Retweet on Twitter 1352000101301039105Like on Twitter 13520001013010391054Twitter 1352000101301039105
louisehelenhuntLouise Hunt@louisehelenhunt·
13h

How important is well fitting stoma bag?
Very.

How do you get the best fit? Have a review of your appliances with a SCN

Read more ⤵️

youngcrohns@youngcrohns

REPOST: From the #YCArchives - The Importance of a AUR – Appliance User Review https://youngcrohns.co.uk/articles/the-importance-of-a-aur-appliance-user-review/?utm_source=ReviveOldPost&utm_medium=social&utm_campaign=ReviveOldPost #repost #adventureswithachronicillness #youngcrohns #healthblogger

Reply on Twitter 1351999565570969601Retweet on Twitter 1351999565570969601Like on Twitter 1351999565570969601Twitter 1351999565570969601
louisehelenhuntLouise Hunt@louisehelenhunt·
17h

Completed quite a big chunk of my studying today, had a nice catch up with my dad and now I’ve made teriyaki sauce for dinner - on to a winner today.

Reply on Twitter 1351937636362022919Retweet on Twitter 1351937636362022919Like on Twitter 13519376363620229191Twitter 1351937636362022919
louisehelenhuntLouise Hunt@louisehelenhunt·
18h

💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ Yes and no.⁠ ⁠ Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠ ⁠ ⁠ No, ❌ I still have moments when I need to take…

📸 https://www.instagram.com/p/CKRdLw9HQw-/ via https://tweet.photo

Reply on Twitter 1351923697179906049Retweet on Twitter 1351923697179906049Like on Twitter 1351923697179906049Twitter 1351923697179906049
louisehelenhuntLouise Hunt@louisehelenhunt·
21h

Starting my first module of AAT Level Three today.

This is the Advanced Diploma and it’s a step up from the previous course.
Fingers crossed! 🤞🏻🤞🏻🤞🏻

Reply on Twitter 1351884443817041920Retweet on Twitter 1351884443817041920Like on Twitter 13518844438170419201Twitter 1351884443817041920

Archives

WHAT I WRITE ABOUT

adventures with a chronic illness anxiety awareness blog series CBT cognitive behaviour therapy colorectal surgery corticosteroids counselling crohns disease December deficiency depression EIM extra intestinal manifestations health hernia repair IBD ibd awareness week ibd education life lately series Liver mental health methotrexate milestones MXT ostomy ostomy education ostomy supporting products ostomy uncovered parastomal hernia patient and public involvement PPI steroids stoma bag stoma blockage stoma life stomaversary the digestive system therapy the what and why the what and why series travel what is a stoma world ibd day
🎊 ANNOUNCEMENT 🎊 When this lockdown started 🎊 ANNOUNCEMENT 🎊

When this lockdown started, I started planning my blog work for 2021.

And the one thing I wanted to do was ‘share more’ while protecting my own health journey. It is something I’ve battled with for a long time but I finally had the answer:

WEEKLY NEWSLETTER 

Sharing more to me means writing more. And writing more means more blog posts, rehashing some old ones and generally being more open about the rollercoaster than can be IBD. It’s time to show to everyday, the ‘mundane’ and the ordinary. 

If you want to sign up, find this post in my linkinbio - it’ll be permanently there - and I look forward to you reading and learning a little more about me and IBD. 

xox
💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
  • Facebook
  • Twitter
  • Instagram
  • Pinterest
  • Disclosure
  • Privacy Policy

Copyright © 2020. Created By Lucid Themes