I don’t remember the exact moment my health step up another level, but somewhere around October 2011 – yes, way back then – my disease began being labelled as ‘complex’ Crohns disease. I didn’t know what that meant at that time, but it didn’t sound good. In reality, I learned that it meant I had strictures in my bowel which typical medications wouldn’t solely solve. I would eventually need surgery…

“When they said chronic I didn’t think. They meant every single damn day.” Chronic and invisible. Double whammy. Despite there being so much information out there about the basics of IBD, we as patients still experience misconceptions and misinformation throughout our patient journey. We need to…