IBD Basics: Corticosteriods

What are Corticosteroids & Why are they important? Corticosteriods are a group of anti inflammatory medications – including cortisone, hydrocortisone and prednisone – which mimic the hormones produced by the adrenal gland, which lies above the kidneys. The hormones created by the adrenal gland have many functions but one in particular is that is the ability to heal inflammation; particularly in…

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Deficiencies with IBD

What deficiencies are common with IBD?  When you have a digestive disorder, your gut does not function as it should; which means it has trouble absorbing all the necessary nutrients from the food you take in. For many people with IBD; they can become, overtime, deficient in particular vitamins and minerals. Most commonly are: Vitamin A: Also known as Retinol;…

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My Love for You, Dear Stoma…

Today we celebrate love. A single day devoting to telling whomever we love, that we love them. We shower them with gifts, affection and kind words. I am doing that today too. But for my stoma. Yes, you read that correctly; my stoma. My stoma used to be that elephant in the room, the alien living under my top, a living…

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PCOS and IBD: Another Battle – Part I

PCOS –  Polycystic Ovarian Syndrome  – is something that has been with me since I was 17. I was fortunate enough to be diagnosed under private healthcare and it was always explained to me that it was more about self management that anything else. So since 18, I have been on various contraceptive pills – that help aid the control…

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How do I hate something that has saved my life?

No, seriously, how? Maybe the question should be ‘CAN I hate something that has saved my life?” or even “Can I hate something that has CHANGED my life?” Because, I can hate the fact that my disease was so bad, they had no other option than to remove my colon and give me my ileostomy. I can hate that fact…

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Vedolizumab: The Restart

Following my subtotal colectomy in August; my IBD team recommended returning to Vedolizumab. I had already tried Vedolizumab; receiving the three loading infusions last winter. This is where I was and how I was feeling as 2015 turned into 2016: “… So, it hasn’t gotten any worse, but the past year’s drug choices haven’t made it any better. I’m on…

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One month post op

  “Time moves slowly but passes quickly.” That can be said for my recovery from surgery. I can’t quite believe its been a month already but in the same thought I can believe it. I’ve been experiencing recovery in real time and taken each day as it comes. It hasn’t been easy – but I knew it wouldn’t be –…

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To new beginnings…

Tuesday 23rd August (cont’d) “I’ve got a space for you on the end of the emergency list today, could be this afternoon, probably this evening though.” Ward round this morning and surgeon is keen to remove my colon today. Despite being busy, he will stay and do my surgery when his list is complete. Turned out that meant waiting all…

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