Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps…
crohns disease
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High and Low Symptom Days
One of the worse things about IBD is having unexpected flare ups. You could be perfectly find and then out of nowhere, a deep burning pain starts to build. It’s uncomfortable, unpredictable and can last anywhere from minutes to hours. The best we can do is try to always prepare for it – having heat wraps, painkillers and medications, safe food or drink options, and natural remedies on standby. And…
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Reflecting on 2019 – The Six Month Update
Okay. So how did we get to the end of June already? We are half way through 2019 already. Already! I haven’t really had a chance to reflect on the goals I set myself back in January. You might be wondering, why reflect after only six months? Well, performance reviews in employment take place monthly, quarterly, and six monthly; why not personal reflection? I’ve spent the first half of 2019 really unwell…
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REVIEW: Pelican Platinum with Vitamin E Barrier Range
Why am I using them? Back in late February, I went through a phase where my barrier product wasn’t giving me the protection and security I’d been used to. I started to experience more itching under my baseplate – a sure sign of an impending leak and definitely some skin irritation – and no amount of minor adjustments to my template or routine would fix this: I had to admit…
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How do I do Things for Myself when I’m Unwell?
Reality check: I sometimes I push myself. Too hard. I do things beyond what my pain level will allow me. I end up in more agony because I do things that I shouldn’t, or should just leave well alone. But I don’t listen, silly me. To some extent, I think most people with chronic illnesses do this. For some it’s doing what is necessary and paying the price the day/s…
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Guest Post: MyTherapy
IBD: TAKING CHARGE OF YOUR DISEASE Living with IBD can be difficult sometimes with unpredictable episodes and regular hospital visits that disrupts normal daily activities. However, if the symptoms are well managed, people diagnosed with IBD can live normally with the condition. IBD has been a topic of interest for many people and has become a burden for ages since what specifically causes it is actually not known. So much…
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World IBD Day 2019
“We know It Takes Guts to talk about Crohn’s and Colitis. This World IBD Day, we are supporting people to start conversations that really matter. Crohn’s and Colitis are invisible illnesses and because of the stigma that surrounds them, thousands of people are suffering in silence. It’s time to speak up.” – Crohn’s and Colitis UK This year, Crohn’s and Colitis UK have launched a new website –…
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Post Surgery Check Up
The waiting game Travelled to Stamford this morning to check in with my surgeon following my operation, six weeks and five days ago. I can hardly believe its the middle of May, let alone comprehend that it’s been that long since my surgery back in late March. I have seen my consultant since being discharge from hospital and we regularly email about my symptoms and progress. Despite that interaction, it’s…
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Surgery Anniversary
I’ve been thinking alot lately about surgery and it’s sometimes negative reputation and impact on the chronically ill. When I was first diagnosed with Crohn’s disease and we were discussing treatment options for controlling it, I was positive that I could fight this without the need of surgery. I remained feeling that particular way for many years, even as I went on and came off several medications – noted…