… I sat there, in the unused doctors room, filling in paperwork with a counsellor. I pause before all the sentences, wondering where my stupid emotions fall on the scale of 0 to 5. I think about how bad I feel about who I am,…
-
-
Infliximab #4
So, its been eight weeks since the last hospital visit for the magic mouse juice. This time, I was due to have a two-hour infusion and only one hour of observation. I had gone the eight weeks as was set out by my GI, IBD…
-
Nerves and Anxiety
… I had to decide whether to go or not. I had been out of action and without a social life all through my hospital stays and home recovery periods, I wanted to get out there. But I was afraid. Afraid of being unwell whilst…
-
2013 – Year in Review
This blog turned one year old on the final day of 2013. Those sort of moments tend to allow one to reflected on the past twelve months. When I consider how long and short ago January 2013 was, so much has happened! Here are my…
-
Overdue: Infliximab #3
Infusion #3 was by far the best of the three. Regardless of the cold and the coughing, I went off to the hospital, arrived and met my IBD nurse. Knew that the team had talked about my status and would have decided by the time…
-
Rough / Cough
This has been a rough one for me, more so than before. I can’t quite remember feeling this awful before, without the bowels going crazy and my body flaring. This, in all sense and purpose, is a cold. But given my immunosuppressed body, it has…
-
Half way through or half way there?
So, this week I’m half way through my four weeks of this second infusion. This also means, I’m more than half way to my next infusion too. In fact, its 9 days away and honestly. I’m excited. The difference between now and before Inflixmab is…
-
Infliximab #2
Two weeks came around fast. I could hardly believe it was my bloods check up last Friday, let alone how quickly the weekend came and gone, then it was Tuesday. Time for an all day stint at the hospital, sitting around waiting for time to…
-
Infliximab #1
Yesterday was very interesting. I am very used to being at the hospital, the regularity of my clinic appts and my ‘need’ for blood tests within the NHS trust system, I’m there at least once a week some weeks. That being said, it was extremely…