“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”
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GI Clinic – 21.07.15
“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”
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Infliximab #13 – Not so unlucky for me!
“I take it as a win. The sniffles are a small price to pay for 7 weeks of good bowel behaviour in my eyes.”
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Dietitian – An ‘Update’?
“Its a fine line, and I sit on either side of the fence, every day. I agreed to try it on a trial basis for the rest of July but again, I’m hesitant.”
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Elemental Diary – My “Week” on Liquids ONLY
“Talk about stressful. I’m already anxious about doing this whole six weeks without any food, this isn’t helping.”
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Infliximab #12 – The Worries of a Troublesome Colon
“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”
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Elemental, my dear Louise
I had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much since the beginning of May. I started to feel unwell soon after my last Infliximab infusion but put it down to the stress of finding…
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Infliximab #11 – Ongoing Troubles…
“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long…
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March Madness & MXT
he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.