Four weeks have passed. My blood work was done the day of stoma clinic last week so I was on schedule to receive my final loading dose of Vedolizumab then on to a regular schedule of having it. As I said in my last post…
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Returning to Work…?
Today I attended a work coach appointment at our local Job Centre. NB: I currently receive ESA because I’m unemployed and recovering from surgery. I’m still yet to my surgeon for my post op check, but so far things have been going well with my…
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Taking my Stoma to the Spa
I love a good spa day. Swimming, a steam, hot tub, a treatment and being pampered in a robe and fluffy slippers. My idea of heaven. Over the years I’ve found being in a relaxing environment such as a spa very much help me with…
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Grieving: Those Waves Don’t Stop
They “prep” you for surgery; you hear that a lot in the weeks and days leading up to an operation. Medically, you should be fit enough to withstand the trauma your body is going to under take. You should be aware of the potential dangers, prepare yourself…
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Seriously?!
So, knowing I was going to be in town today for a dental check up, I decided to do some writing in a local coffee shop. Got a loyalty freebie so I was all set. But my stoma had other plans. I was just finishing…
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How do I hate something that has saved my life?
No, seriously, how? Maybe the question should be ‘CAN I hate something that has saved my life?” or even “Can I hate something that has CHANGED my life?” Because, I can hate the fact that my disease was so bad, they had no other option…
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Hitting the Wall (of Denial and Regret)
I think like most people, I am guilty of living in some denial and regret in certain aspects of my life. When it comes to a chronic illness, it’s just that CHRONIC. It doesn’t go away, it can’t be cured only treated and those treatments…
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Vedolizumab: The Restart
Following my subtotal colectomy in August; my IBD team recommended returning to Vedolizumab. I had already tried Vedolizumab; receiving the three loading infusions last winter. This is where I was and how I was feeling as 2015 turned into 2016: “… So, it hasn’t gotten…
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When Surgery Gives You Life: What Makes Me, Me
If anyone has asked me this last year or even a couple of months ago, I would have struggled to answer. Was I definable by my relationship? My role as a friend, a daughter, a sister, a cousin? My likes and dislikes? My invisible illness,…