I’ve had Crohn’s disease for over five years now and I think in all those years I have never ever been off the departments radar. You know what I mean right? I’m always causing trouble. If its not for being in hospital on their ward,…
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Remission: I AM IN IT
So, this week is proving to be quite good. And I want to share my good news, because lets face it, sometimes it happens so infrequently, I just get too excited. Today I’ve had the results of my MRI scan from last week come back,…
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MRI Scan: Small Bowel Study – 19.01.17
So, last week I was at the hospital for a routine test; a Small Bowel MRI Study. My surgeon is using this procedure to finalise the plans for whether or not I continue to receive my Vedolizumab treatment, as my Crohn’s has gone into possible…
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“Remission” – One Step Closer
I have questions. So. Many Questions. 1. How do you determine if surgery has succeeded? 2. How do you measure ‘remission’? 3. Can you actually achieve it? 4. Do I want to be medication free? I hope these all seem logical, or at least follow…
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What Does Chronic Illness Rob You Of?
It wasn’t long before I was thinking about how things had changed and how that upset me so much. What else was Crohn’s disease going to take from me? I wrote this the day after my first relationship since my diagnosis with Crohn’s disease broke…
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2016 – Year in Review
To say it’s been a challenge this year, is abit of an understatement. I went into 2016 knowing I would be having surgery and thing would be unstable for a while. The build up to surgery was agonising but I knew it would improve my…
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Being Chronically Ill at Christmas
Each year I am so thankful I make it to the festive period and survive it. Why? Christmas for me is a time to reflect and see what I’ve been through. It gives me strength for the year ahead. We can draw a line under…
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2017 Goals
In 2016 I made a conscious effort to set myself realistic goals and hoped to hell that I could achieve them. I found that keeping goals helped me focus on something, especially when things got shitty and problematic. So I’ve set myself some specific health ordinated goals. These…
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Forgetting about ‘The IBD’ and *all* that Anger
So it was Tuesday night and the boyfriend and I were discussing the previous day’s appointment with my surgeon. As much as I respect the logic and reasoning behind my surgeon’s need to keep me under his care and continue to test me – to…