“Talk about stressful. I’m already anxious about doing this whole six weeks without any food, this isn’t helping.”
IBD
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Infliximab #12 – The Worries of a Troublesome Colon
“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”
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Elemental, my dear Louise
I had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much since the beginning of May. I started to feel unwell soon after my last Infliximab infusion but put it down to the stress of finding a new job and being unhappy at being at home all the live long week. But as the bathroom trips became more frequent, more painful…
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Infliximab #11 – Ongoing Troubles…
“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”
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March Madness & MXT
he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.
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Infliximab #9 and #10
” It’s now become more about the psychological warfare of not knowing what is causing me to feel like this.”
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Liver, PCOS and IBD – What a combo!
I am awful at keeping things up to date recently, but I’ve had alot to mull over and consider. Since Infliximab #8 I’ve been to the hospital for various appointments. I’ve seen my Liver specialist, had a small bowel MRI done, finally seen a Rheumatologist, my gastro, a dental surgeon and my GP. None of these things are new nor are they unrelated; they have all somehow become interlinked.…
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Infliximab #8
Yep, its been the two month wait for Infliximab. Feels longer; it was overdue by a week, caused by scheduling problems. Alas, I attended the hospital yesterday; after a problematic and rough week or so; very glad to be there and finally getting my infusion. Prior to this, I had two lots of bloods taken. Both were okay, not as good as usual – WCC was up along with…
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Infliximab #7 and Liver Problems
For all of 2014 my liver function tests have been steadily rising. When the new GI took over just before Spring, I suffered a couple of problems that lead me to A&E on a busy Saturday afternoon, in which we discovered how high my AST and ALT’s were – way over the parameter maximum of 40; some where in the 200’s – and the testing began. My GI order ultrasound,…