” It’s now become more about the psychological warfare of not knowing what is causing me to feel like this.”
-
-
Liver, PCOS and IBD – What a combo!
I am awful at keeping things up to date recently, but I’ve had alot to mull over and consider. Since Infliximab #8 I’ve been to the hospital for various appointments. I’ve seen my Liver specialist, had a small bowel MRI done, finally seen a…
-
Infliximab #8
Yep, its been the two month wait for Infliximab. Feels longer; it was overdue by a week, caused by scheduling problems. Alas, I attended the hospital yesterday; after a problematic and rough week or so; very glad to be there and finally getting my infusion.…
-
Infliximab #7 and Liver Problems
For all of 2014 my liver function tests have been steadily rising. When the new GI took over just before Spring, I suffered a couple of problems that lead me to A&E on a busy Saturday afternoon, in which we discovered how high my AST…
-
Infliximab #6 and more…
Updates galore tonight – I’ve been extremely busy and to some extend, ignoring my problems a little. The build up to the latest Infliximab infusion was interesting; ten days before I started experiencing extreme fatigue in my leg and arm muscles. This would get a…
-
World IBD Day
As this ordinary Monday comes to a close to many, I sit here going into the final few GMT hours of World IBD 2014 with some unrest. Should I show them? No one has seen these before, I’ve not allowed myself to bear these photos…
-
Pause
Things have been pretty good lately. So good in fact, that its difficult to cast my mind back to a time when I was unwell and feel pretty rubbish. The infliximab has really been keeping my Crohn’s under control and I’ve hardly had any reoccurrence…
-
Infliximab #5
Another eight weeks have passed.. Another Monday lunchtime spent at the hospital, this time only for two hours; a one hour infusion followed by a hour of observations. As always, there were problems prior to the infusion, discussed before the weekend in “Spring Forward”…
-
Spring forward
Nothing like spending a Saturday evening in the hospital is there? That’s where I was two weeks ago, after a painful afternoon of sickness, I succumbed to my body and was taken to our local A&E department. I got assessed, had my blood taken, lots…