Something I had never really considered before was; How much involvement do patients have with research within the scope of their conditions? Turns out, lots. Why is this important? Patient & Public Involvement (PPI) is something that happens within all clinical research or clinical trial. And when you think about it, it makes sense – why would you research something, create and set up a trial for something new, if…
-
-
The What and Why: Inflammation & CRP
Disclaimer: This information is based on my own research into this particular aspect of IBD as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your IBD team for medical advice. If you are looking for the…
-
Ostomy Uncovered: One Piece v Two Piece Systems
Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your SCN for medical advice. If you are looking for the entire…
-
IBD Basics: Methotrexate
Disclaimer: This information is based on my own research into this particular aspect of IBD as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your IBD team for medical advice. If you are looking for the…
-
Ostomy Uncovered: Blockages
Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your SCN for medical advice. If you are looking for the entire…
-
IBD Basics: Immunosuppressants
Disclaimer: This information is based on my own research into this particular aspect of IBD as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your IBD team for medical advice. If you are looking for the…
-
IBD Basics: Azathioprine & Mercaptopurine – 6-MPs
Disclaimer: This information is based on my own research into this particular aspect of IBD as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your IBD team for medical advice. If you are looking for the…
-
Ostomy Uncovered: How to Change a Stoma Bag
Disclaimer: This information is based on my own research into this particular aspect of stoma care as well as some personal experience and should not be used as medical advice or a diagnostic tool. The suggestions given within are taken from sources laid out in the references header. If you seek advice regarding the things you experience within your own disease, please contact your SCN for medical advice. If you are looking for the entire…
-
What Advice do Patients look for Prior to Ostomy Surgery?
Whenever I hear of new ostomates, I always wonder What sort of questions do they ask? How much do they get told? How curious they are? and What is their medical background? Basically, I wonder how prepared they are. And if that preparation has come from themselves or from healthcare professionals. Because requiring a stoma comes from so many different medical conditions, I’m trying to go with the assumption…