** WARNING: graphic details about surgery and rectal stumps. NO PHOTOS just words ** Bear with me, this is going to get technical and emotional. Who would have thought a 30cm piece of my insides would cause me so much damn stress and pain? The Story I needed to have another surgery in August 2016 – my subtotal colectomy – after I discovered just how inflamed and damaged my colon…
life lately series
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Life Lately | The Revolving Door of Feelings
“It’s a shame. It’s awful being a grown up. But the carousel never stops turning. You can’t get off.” Hands up, who else feels like this? I definitely feel this a lot of late. I thought it was just a chronic illness problem; that my life was beginning to be more and more dictated by my illness more than the other way around. With chronic illness, you feel…
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Life Lately | Change, Change, Change
I’ve been pretty quiet here of late. Most of that is due to moving and all the emotions that brings up… Some of it is purely down to lack of anything interesting to write or share with you. But it has been troubling me; not having this creative outlet when things get tough. You see, this week, whilst it’s been #mentalhealthawarenessday I’ve been struggling more than usual. Alot of change…
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Life Lately | Rollercoasters
I don’t even know where to begin. Seriously, it’s been an awful time lately. Whilst I’ve avoided anything majorly going wrong or happening, I’ve had tons of shite dumped on top of me and I find myself struggling beyond my wildest dreams. It all started when I got the results of my latest lot of scans and blood work back – I had a Liver MRI and Pelvis MRI…
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Life Lately | Into Thirty We Go!
More of the same, ahead we go… My health has been so up and down of late; most of which needed some attention, I was completely unphased by my birthday on Monday! Processing and accepting where things are heading with each new issue is hard. And coping with anxiety doesn’t make any of this any easier; not that it would be easy without the anxiety.. I’ve had some time off…
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Life Lately | “And Another Thing..”
Do you ever have those moments when you just think ‘What else can be thrown at me?’ Not that I haven’t been feeling okay lately, but its been chock full of just things that need to be sorted and nothing is every simple with me. For one reason or another, every week for a while, I’ve had my blood taken. Sometimes for my IBD monitoring or a potential flare up,…
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Life Lately | “How’s It Going?”
I’ve been posting a lot lately, which hasn’t been the norm for a long while. Some of the explanation is because I hadn’t been inspired by much in the past couple months and my fatigue had been eating away at my free time as napping had taken over; but it’s most recently its been down to the fact I’ve been off sick. Yes, signed off sick from work, yet again.…
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Life Lately | Pushing Through
I like to think that life throws you only what you can handle. That we get given things that will test us but will not break us. Sure, they push us to breaking point but we never break. I’ve dealt with a lot of things in the last six years, especially in the months following surgery. I like to believe that those months in post op recovery is where…
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Life Lately | Vedolizumab Side Effects
When I feel ill last summer, I was given the opportunity to start Vedolizumab again. For the third time. At the time, I was given a ‘that speech’ about the risks and benefits of this medication and what it could do to me. You get this every time you start something new, it is a doctor’s prerogative to explain your treatment in full, with side effects, possibly risks and hopeful…