Despite my best efforts, it seems my current run of Vedolizumab is over. This is what happened at the turn of 2015 into 2016: “I’ve finished my loading doses of my Vedo! That happened two weeks ago and was eventful as always – six attempts…
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Nottingham: Moran and Multiple Choices – 27.01.16
I’ve never seen a different gastroenterologist in a different hospital before. I was full of anxiety and fear of being unable to explain my history to him or to even get him to help me. I was over thinking everything I wanted to say and…
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The end of Biologics: Colorectal Referral – 12.01.16
I’ve had Crohn’s for almost four and a half years but this is the first time I’ve been anxious like this in a very long time. It’s certainly the first time I’ve come face to face with a surgeon. It was nerve wrecking. The judgment…
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Hello 2016..?
I started 2016 in pain, surprise surprise! I slept through all the new year celebrations, awaking groggily in the morning, trying to find some strength. Why would I need to find strength knowing it was a Bank Holiday weekend, I hear you ask? Well, I’d…
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I am scared.
“So I am scared of all of this. That I’m trying so hard to get some control of everything, I’m trying to not be angry but being angry is all I can feel. “
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Vedolizumab #1 & #2 – Do I dare hope..?
“The biggest thing today was how much care and attention I receive from my IBD team. And I really need to fight to keep that the same; given the NHS Trust’s changes.. “
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The road to Vedolizumab
“The best I can do is just hope for the best and deal with the worse, if and when it shows up.”
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Infliximab #14 – The Final One
“I’m willing to give it a whirl but how much of this is just putting off the somewhat inevitability of surgery? Its the big unknown and the big elephant in the room.”
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Misery DOES NOT enjoy company
I am feeling utterly miserable today. I don’t know what has gotten into me, but I don’t feel happy at all. Maybe it’s the 4am wake up call my subconscious gave me this morning, the belly pain that started up soon after my eyes adjusted…