“I take it as a win. The sniffles are a small price to pay for 7 weeks of good bowel behaviour in my eyes.”
crohns disease
-
-
Dietitian – An ‘Update’?
“Its a fine line, and I sit on either side of the fence, every day. I agreed to try it on a trial basis for the rest of July but again, I’m hesitant.”
-
Elemental Diary – My “Week” on Liquids ONLY
“Talk about stressful. I’m already anxious about doing this whole six weeks without any food, this isn’t helping.”
-
Infliximab #12 – The Worries of a Troublesome Colon
“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”
-
Elemental, my dear Louise
I had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much since the beginning of May. I started to feel unwell soon after my last Infliximab infusion but put it down to the stress of finding a new job and being unhappy at being at home all the live long week. But as the bathroom trips became more frequent, more painful…
-
Infliximab #11 – Ongoing Troubles…
“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”
-
March Madness & MXT
he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.
-
Infliximab #9 and #10
” It’s now become more about the psychological warfare of not knowing what is causing me to feel like this.”
-
Liver, PCOS and IBD – What a combo!
I am awful at keeping things up to date recently, but I’ve had alot to mull over and consider. Since Infliximab #8 I’ve been to the hospital for various appointments. I’ve seen my Liver specialist, had a small bowel MRI done, finally seen a Rheumatologist, my gastro, a dental surgeon and my GP. None of these things are new nor are they unrelated; they have all somehow become interlinked.…