“So I am scared of all of this. That I’m trying so hard to get some control of everything, I’m trying to not be angry but being angry is all I can feel. “
Search results: MRI
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Vedolizumab #1 & #2 – Do I dare hope..?
“The biggest thing today was how much care and attention I receive from my IBD team. And I really need to fight to keep that the same; given the NHS Trust’s changes.. “
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The road to Vedolizumab
“The best I can do is just hope for the best and deal with the worse, if and when it shows up.”
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Infliximab #14 – The Final One
“I’m willing to give it a whirl but how much of this is just putting off the somewhat inevitability of surgery? Its the big unknown and the big elephant in the room.”
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GI Clinic – 21.07.15
“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”
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Infliximab #13 – Not so unlucky for me!
“I take it as a win. The sniffles are a small price to pay for 7 weeks of good bowel behaviour in my eyes.”
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Elemental Diary – My “Week” on Liquids ONLY
“Talk about stressful. I’m already anxious about doing this whole six weeks without any food, this isn’t helping.”
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Infliximab #12 – The Worries of a Troublesome Colon
“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”
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Infliximab #11 – Ongoing Troubles…
“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”