#IBD Hour – Biological Treatments

Tonight I hosted the #IBDHour chat on Biological Treatments. In the last six years since I was diagnosed, I have found that I respond best to biological medications; which have given me good quality of life (QoL) and the ability to be closely monitored and managed by my IBD teams. In this post, I’ll answer – at length, because 240…

Share:

World IBD Day

As this ordinary Monday comes to a close to many, I sit here going into the final few GMT hours of World IBD 2014 with some unrest. Should I show them? No one has seen these before, I’ve not allowed myself to bear these photos to other humans, not even other IBDers.. what am I scared of? What am I…

Share:

2013 – Year in Review

This blog turned one year old on the final day of 2013. Those sort of moments tend to allow one to reflected on the past twelve months. When I consider how long and short ago January 2013 was, so much has happened! Here are my highlights: Finally came off the dreaded Humira injections. Created and set up Crohn’s and Colitis…

Share:

Rough / Cough

This has been a rough one for me, more so than before. I can’t quite remember feeling this awful before, without the bowels going crazy and my body flaring. This, in all sense and purpose, is a cold. But given my immunosuppressed body, it has hit extremely hard; with each day providing me with a new and strong symptom, so…

Share:

Half way through or half way there?

So, this week I’m half way through my four weeks of this second infusion. This also means, I’m more than half way to my next infusion too. In fact, its 9 days away and honestly. I’m excited. The difference between now and before Inflixmab is huge. And add to this how different I feel between first and second infusion, and…

Share:

Infliximab #2

Two weeks came around fast. I could hardly believe it was my bloods check up last Friday, let alone how quickly the weekend came and gone, then it was Tuesday. Time for an all day stint at the hospital, sitting around waiting for time to pass. This time, everything was delayed. I was on a later appointment schedule, so that…

Share:

Day Nineteen – Vintage

Post a vintage photo of yourself, with a captain about the photo and where you were in terms of your health condition.   This is a photo I took the afternoon of my first Humira injection. It was the first time in almost 4 months that I felt okay. Not good, or great, just okay. It was a big step for…

Share:

Pred, Pred and MORE Pred.

As I’m sure everyone else who takes steroids or has taken them, the gradual drops in the weekly, bi weekly or monthly doses is met with jubilation. I found myself getting rather exciting to moving from 10mgs to 5mg next week and finally stopping them on my birthday, two weeks away. Sadly, my GI is not sharing my jubilation. I have…

Share:

Looking for Something?