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    • Medication Free

    Being [Unexpectedly] Medication Free for a Year

    I remember vividly two days that began my journey with Vedolizumab; “she returned my call, the long and short of it being that “no, this isn’t working“; agreeing with my…

    Read More
    • Crohns
    • Medication
    • Medication Free

    New Beginnings & IBD Remission

    New Decade, New Year, New Beginning. It seems to flow nicely, that sentence, doesn’t it? Of course, most beginnings don’t present themselves or occur so succinctly as a new calendar…

    Read More
    • Crohns
    • Medication
    • Medication Free

    Being Medication Free: It’s Effects on My Body

    Disclaimer: This information is based on my own personal experience since being able to come off my Crohn’s medications. This is always done with authorisation of my consultant and my…

    Read More
    • Appointments
    • Hospital
    • Medication Free

    GI Clinic 21.03.17

    This has probably been the first time in forever that I haven’t really been bothered about going to see my Gastro. I haven’t really had any problems; I’m not taking any…

    Read More
    • Medication
    • Medication Free
    • Mental Health

    Coming off “The Radar”

    I’ve had Crohn’s disease for over five years now and I think in all those years I have never ever been off the departments radar. You know what I mean…

    Read More
    • Medication
    • Medication Free
    • Milestones

    Remission: I AM IN IT

    So, this week is proving to be quite good. And I want to share my good news, because lets face it, sometimes it happens so infrequently, I just get too…

    Read More
    • Medication
    • Medication Free

    “Remission” – One Step Closer

    I have questions. So. Many Questions. 1. How do you determine if surgery has succeeded? 2. How do you measure ‘remission’? 3. Can you actually achieve it? 4. Do I…

    Read More
    • Crohns
    • Medication
    • Medication Free

    Going Medication free..? Is this *the* IBD dream?

    I received correspondence from my GI yesterday, following my clinic appointment with him last Tuesday. It made for an interesting read: “I am sorry you came to separate surgeries, initially…

    Read More

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Welcome to YoungCrohns: Adventures with a Chronic Illness.

I’m Louise; a passionate advocate and patient of IBD as well as a coffee addict who loves a good face mask and enjoying a good burger.

I love sharing my experiences and stories of living life with Crohn’s disease and a permeant ileostomy. 

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💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
It has been a tough ol’ year. It’s been full o It has been a tough ol’ year.
It’s been full of emotions, that swinging violently from positive to negative, from one day to the next.
These last few days have been even tougher.
But we are tough.
We are resilient.

We’ll push on through, because we didn’t just come this far, to only come this far 💜

✨✨✨
•
•
•

#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
My diet did not cause my condition. ⁠ ⁠ ⁠ In My diet did not cause my condition. ⁠
⁠
⁠
In the mist of all the merriment and gluttony of Christmas, it can be easy to think or question “does the food I eat cause my IBD to flare?” 💭 

Diet does not cause IBD.

🚨WE DON’T YET KNOW WHAT CAUSES IBD 🚨

We know that some aspect of diet can trigger certain individuals but not the community as a whole. Diet and food is a very subjective, cultural, personal and individualistic part of life, regardless of health issues.

So in this time of food, glorious food, know that what you eat might impact your health for a short while after - like it will for most people! - but it won’t automatically trigger your IBD to go on a rampage.⁠

Keep hydrated, chew well, don’t overdo it too much and have a stash of emergency medicine handy. But most of all, ENJOY! 🍽 
⁠
⁠
Please share, save and comment to spread the word 😚⁠
•⠀⠀⠀⠀⁠
•⠀⠀⠀⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd

Latest Posts

  • Experimenting and Exploring Food with an Ostomy

    20/01/2021

  • I AM SCARED, despite being in such a joyous season

    08/12/2020

  • Never Give Up Hope

    01/12/2020

Louise HuntFollow

Louise Hunt
louisehelenhuntLouise Hunt@louisehelenhunt·
4h

Starting my first module of AAT Level Three today.

This is the Advanced Diploma and it’s a step up from the previous course.
Fingers crossed! 🤞🏻🤞🏻🤞🏻

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Retweet on TwitterLouise Hunt Retweeted
actionhappinessAction for Happiness@actionhappiness·
22h

When it feels more difficult, be more gentle

Image: https://instagram.com/jessrachelsharp

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louisehelenhuntLouise Hunt@louisehelenhunt·
7h

⚡ New Blog Post ⚡

Experimenting and Exploring Food with an Ostomy

What challenges does food pose after stoma surgery? Does it improve over time? Read more below ⤵️ https://youngcrohns.co.uk/blog/ostomy/experiementing-and-exploring-food-with-an-ostomy/

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louisehelenhuntLouise Hunt@louisehelenhunt·
8h

More website ANNOUNCEMENTS coming today! 🎉

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louisehelenhuntLouise Hunt@louisehelenhunt·
8h

Started my morning dealing with a crazy cat. He recently turned three, so is this the teenage years for a cat? I dunno 🤷‍♀️but he is crazier than usual....

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💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠ ⁠ 💭 IS YOUR DIET DIFFERENT WITH A BAG?❔⁠
⁠
Yes and no.⁠
⁠
Yes, ✔️ I am able to eat more - in variety and quantity - than I could ever do with my diseased colon. ⁠
⁠
⁠
No, ❌ I still have moments when I need to take things slow - meaning bland and predictable - because I'm having a rough day or two. Much like anyone else, my diet is personal to me; meaning I can pretty much eat what I like and when *in moderation.* ⁠
⁠
It is certainly more pleasant now than when I a) had my colon and it was riddled with Crohn's and b) my IBD was flaring.⁠
⁠
If you find yourself concerned about what life after a stoma is like, and food is your big worry; talk to other ostomates, to get a fuller look into what it is like. But please remember, diet is very individual and affects are not universal. ⁠
⁠
You can read more of my journey and tips with food after stoma surgery in my new blog post - linked in my profile.⁠
⁠
Please share & tag, save and comment to spread the word!⁠
•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
 #adventureswithachronicillness  #ostomyawareness #nocolonstillrollin  #ostomylife #ostomywarrior  #stomastigma #nocolonclub #barbiebuttgang
Week Three of 2021 and what feels like Day One Bil Week Three of 2021 and what feels like Day One Billion of #Lockdown3.0 ⁠
⁠
I admit I am feeling cooped up and frustrated. I'm having odd dreams - meaning lots of broken sleep - and hardly any motivation or focus to get my 'work' done lately. ⁠
⁠
But the best thing I can do is take my time and remember to be kind to myself. To take time away from my screens, to reconnect with words, to switch off from the crazy world for a moment.⁠
⁠
And if you are feeling the same, or feeling like things are tougher than you can cope with, remember this quote - your kindness goes beyond the marks you leave.⁠
⁠
Happy Monday 💜⁠
⁠
⁠
⁠
•⁠
•⁠
•⁠
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
Happy #adoptaversary Newton! 🎊 Two years fille Happy #adoptaversary Newton! 🎊

Two years filled with this crazy tabby; a constant comfort during a week this pandemic and surgery last year 🙌🏻
•
•
•
#adoptdontshop #adoptdontshop🐾 #catsofinstagram #cats_of_instagram #catstagram #catadventures @catventuresofnewton
THANK YOU for being here with me this year 💛 F THANK YOU for being here with me this year 💛

For each conversation, for each comment, for each connection, for each share, like and save. It is a wonderful thing to be part of this online community, more so this year than ever.

I gained another diagnosis and had another surgery this year. More testimony to the fact that chronic illness life does not stop, not even in a pandemic.

I feel stronger than I did at the start of 2020 and I’m taking that energy into 2021 😘

•⠀⁠
•⠀⁠
•⠀⠀⠀⠀⁠
#adventureswithachronicillness
Anyone else? 😂 But in all seriousness, I know Anyone else? 😂

But in all seriousness, I know much won’t change tomorrow except for the date. It’s been a hard, long, frustrating and painful year; and that’s just the COVID stuff. Beyond that, it’s had some seriously rough moments.

Keep on washing your hands, wearing a mask and staying socially distant. Stay safe out there, look after yourself 🤘🏻
•
•
•
#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
⭐️ “Don’t just be good to others, be good ⭐️ “Don’t just be good to others, be good to yourself” ⭐️
ALL CONTENT COMPLETE: ✅ OUT OF OFFICE: ✅ G&Ts ALL CONTENT COMPLETE: ✅
OUT OF OFFICE: ✅
G&Ts POISED AND READY: ✅
FESTIVE SNACKS AND FILMS: ✅

I’m totally ready for a break.
To switch off, to nap, to relax and unwind.
It has been a tough ol’ year. It’s been full o It has been a tough ol’ year.
It’s been full of emotions, that swinging violently from positive to negative, from one day to the next.
These last few days have been even tougher.
But we are tough.
We are resilient.

We’ll push on through, because we didn’t just come this far, to only come this far 💜

✨✨✨
•
•
•

#adventureswithachronicillness #wordsofwisdom #wordstoponder #wordstoinspire #crohndisease #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #ittakesguts #nocolonstillrollin
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