Personal

includes posts with photos of me

IBD & My Relationship with my Parents

Chronic Illness and Family. Being sick definitely changed the dynamic of our family. Diagnosis Day landed a brick in our household that came from nowhere. We didn’t know how to act, we didn’t know how to communicate and we didn’t know how to respond to what I was being told – You have an incurable illness that will be lifelong and difficult at times.  I remember just being glad it wasn’t cancer. I also remember thinking that I would beat this and it would be over soon and thing would go back to normal. We all know, ‘going back to normal‘…

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Life Lately | Surgical & IBD Update

Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps – feeling well enough when waking up that I feel productive and motivated, and then feeling unwell on waking up that I have to spent the day recovering from whatever…

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Life Lately | Wound Care

DISCLAIMER: This post discusses the care of surgical wounds. No photos of any wounds are present in this post. The thing with surgery is you are left with scars. Scars mean wounds. And wounds mean wound care. For each of my bowel surgeries, I’ve been left with wound in the immediate post op period. My Right Hemicolectomy left me with four laparoscopic wounds, one of which was in my belly button and became infected. My Subtotal Colectomy I had a midline incision which came slightly undone about two weeks post op and scared the life out of me at a…

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Life Lately | Endocrinology

Pesky Ovaries! I’ve mentioned before, following some investigatory blood work, my GP had referred me to a Endocrinologist for some more answers and possible treatment for my PCOS. Background: I’ve been diagnosed with PCOS – Polycystic Ovary Syndrome – since I was 16/17 when I had a very large absence of periods, as well as ‘weight gain’ and some hirsutism. This was, back then almost 15 years ago, treated with the contraceptive pill for a long while. I tried a variety of ones to find a suitable one. Just before I started to become unwell with my IBD diagnosis, I was…

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Life Lately | The Triple

The Triple Hi there, hello, welcome. They say things come in threes right? Well, that’s definitely true for me and my health. And this year has begun to already feel like the mother of all triples. These last ten days or so have been feeling like a triple, all of it’s own. Propranolol At the end of February, I was struggling to get into work. I was becoming more symptomatic with my IBD – Vedolizumab was scheduled but it would be overdue when I’d get into the unit for my infusion – and on top of that my anxiety was raging. One…

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