All posts relating to MY Crohns

Do I Consider Myself Disabled?

Inspired by the KTMY post ‘Am I Disabled? Why you should define chronic illnesses as a disability’ Does ‘Invisible Illness’ Equal ‘Disability’?   Controversial but a hotly debated topic for those within the chronic and invisible illness community. Lots of questions get raised such as: What is a chronic illness?  What is an invisible illness? Should this conditions come under disability? What exactly is disability? How do we measure this? How does labelling those with chronic and invisible illnesses as ‘disabled’ impact on them? How do you define your own disability if you have an chronic or invisible illness? I’ll try…


Pain: When does Acute turn into Chronic?

Pain. It’s all relative. It was last Spring and I had just started on a new pain relief medication, after a stint in A&E. I was already on Amitriptyline and now we were adding Gabapentin into the mix. I had been living with my rectal stump for almost eighteen months at this point and every day it was getting more and more uncomfortable. With it’s intimate location, I was limited to what I could take to ensure I could get some respite from the pain. I’d also been doing steroid enemas to help with the mild inflammation from a scope…


This is Not My First Choice

Monday. This morning I ordered my stoma supplies with my delivery company and my prescription with my GP.  By next week I’ll be organising and putting away another months worth of supplies to get me through August.  August. My stoma was created three years ago this August. The day before my partners birthday – we celebrated my ‘new’ chapter and his life.  I was always very comfortable with my stoma. Never really hated it as a concept, just what it would do to my skin when my new liquid poop burnt my skin. There are ways to cope with that, but what…


Life Lately | Surgical & IBD Update

Let’s catch up, shall we? I haven’t done a ‘Life Lately‘ posts since I was having my wound dressed each day. That feels like forever ago but it has only been a matter on weeks. So, let’s catch up on everything medical that’s happened since my Vedolizumab at the end of May. A general overview of June can be found here. The whole of June can be split into two camps – feeling well enough when waking up that I feel productive and motivated, and then feeling unwell on waking up that I have to spent the day recovering from whatever…


High and Low Symptom Days

One of the worse things about IBD is having unexpected flare ups. You could be perfectly find and then out of nowhere, a deep burning pain starts to build. It’s uncomfortable, unpredictable and can last anywhere from minutes to hours. The best we can do is try to always prepare for it – having heat wraps, painkillers and medications, safe food or drink options, and natural remedies on standby. And as much as it sucks, try to remind yourself that what goes up must come down. I’ve lived with Crohn’s Disease for almost a decade now and I still sometimes…


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