Welcome to YoungCrohns: Adventures with a Chronic Illness.
I’m Louise; a passionate advocate and patient of IBD as well as loving coffee, a good face mask and Mac & cheese.
I love sharing my tales and stories of living life with Crohn’s disease and a permeant ileostomy.
This section is dedicated to my own experiences as a patient throughout my almost decade with a chronic illness.
You’ll also find my writings on the subject of advocacy and awareness raising.
So, twelve days ago - January 19th to be precise - I gave myself my second home injection of Humira. The first one since finding out I was in a sort of ‘remission’. I air quote this because the term and understanding of ‘remission’ is subjective and very unclear. It’s variety makes it difficult to form consensus, but I digress. Every day since then I have woken without any pain, without a fever, without much tiredness and without the fear of a set back. Today, no such luck. Belly pain. Frequent visits to the bathroom. Unable to find anything appealing to eat. Constant thirst. Something is wrong. I should have known it when my back pain was back with vengeance yesterday afternoon; but I put it down to my busy Saturday and spending far too many hours in a pub with that friend of mine, vodka. Ugh. I have no regrets for how I spend my weekend, but something just isn’t sitting right with me. I have no idea if my symptoms today are a result of doing too much recently - in the past week … [Read More...] about Twelve Days