Welcome to YoungCrohns: Adventures with a Chronic Illness.
I’m Louise; a passionate advocate and patient of IBD as well as loving coffee, a good face mask and Mac & cheese.
I love sharing my tales and stories of living life with Crohn’s disease and a permeant ileostomy.
This section is dedicated to my own experiences as a patient throughout my almost decade with a chronic illness.
You’ll also find my writings on the subject of advocacy and awareness raising.
Yesterday I got the call that will hopefully start to change my Crohnie life again. My IBD nurse confirmed that the GI GMT have successfully approved me for Infliximab. I go back to the hospital next Tuesday for a "routine" clinic appointment to fix my first infusion date, after my bloods, TB test and chest X-ray. I had had an god awful day at work. Short staffed, in pain and bloated to within an inch of my work uniform, I was eagerly anticipating my vibrating phone my apron pocket, telling me my answer was finally here. I was in completely my own world until we cleaned up and were about to leave when I checked my voice mail. I was over the moon. I could finally start getting better! I just had to get through October, as the infusion suite is massively booked up until early November. The thought only occurred to me as I started to drift off into slumber land, this must mean I fit the criteria for Infliximab. Detailed on page fourteen (NICE guidance for Adalimumab and Infliximab) … [Read More...] about Infliximab