• Ten Positives to Take from 2020

    Let’s be honest here, 2020 definitely sucked. It was universally a terrible year of loss, grief, devastating news and uncertainty. For most, that won’t have inspired alot of positives going into 2021. But, there is always hope and light in the darkest of times. What positives have come out of 2020? 1. Having a healthy […]

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  • 2021 Goals & Intentions

    Well, okay. 2020 did not happen the way anyone had expected. A global pandemic and almost a year of national lockdown? Crazy. Not only that but I had unexpected hernia surgery and a new diagnosis of diabetes. A huge amount of change, frustration and angst. But as 2020 concludes, I am thinking deeply about what […]

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  • Never Give Up Hope

    Every October and November, I feel nostalgic. I feel the swirl of memories flood my mind, of being taken back to days in the hospital for treatment, of being hooked up to an IV stand. The first time was October 2013, when I moved from Humira to Infliximab. Going from an at-home self-injection to a […]

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  • Flare Up Management

    How to make decisions to help tame the IBD monster NB: This had been intended to be written before we knew anything about coronavirus (COVID-19) so there has been the addition of COVID information throughout this article; to be relevant and highlighted for easy visibility. Hospitals are undergoing significant changes as they adapt and respond […]

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  • Hernias & Stomas

    I remember sitting in my hospital bed, after my first solo stoma bag change back in 2016 and my nurse said “you must always try and avoid a hernia. You are more susceptible to them now”. I was four or five days post op and I just nodded along. It was never a big worry […]

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  • Remaining Strong in the Face of Chronic Illness

    “Just because you carry it well, does not mean it’s not heavy” I find myself thinking about this quote more and more frequently these days. Not sure if it’s lockdown impacting on my brain or the fact that life has been forever changed by the pandemic , but there is something to be said about […]

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  • Having Major Surgery During a Pandemic

    I know almost all of us did not expect nor predict that 2020 would be how it has been thus far. It has been without a doubt the most challenging year for a very long time. However, when you have a chronic illness, you go through periods where you are indeed isolated and out of […]

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  • Being and Staying Positive

    “May the flowers remind us why the rain was necessary” “One day at a time” “Be gentle with yourself, you’re doing the best you can” We hear ‘positive‘ quotes all day long in the chronic illness community. From helping us get through a tough day, to reminding someone else they are stronger than their mind […]

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  • Diagnosis Day

    In the Autumn of 2011, I spent hardly anytime online. In fact, I spent several weeks on several occasions, battling my defunct body in the hospital. I remember a lot of emotions from those weeks I spent in isolation, unsure of what was happening, what would happen and how I was going to cope with […]

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