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XOXO
Read MoreWe sat in the car, driving to the hospital. Nothing unusual in that; we often drive to the hospital. But I sat there wondering why he was so okay with taking me there. When did it become so normal for us to be going there because I had an appointment, needed blood taking, was having […]
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Hello 2016..?
Read MoreI started 2016 in pain, surprise surprise! I slept through all the new year celebrations, awaking groggily in the morning, trying to find some strength. Why would I need to find strength knowing it was a Bank Holiday weekend, I hear you ask? Well, I’d received a letter the day before; a consultation with a […]
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Oh. Oh dear..
Read More“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”
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Dietitian – An ‘Update’?
Read More“Its a fine line, and I sit on either side of the fence, every day. I agreed to try it on a trial basis for the rest of July but again, I’m hesitant.”
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Elemental Diary – My “Week” on Liquids ONLY
Read More“Talk about stressful. I’m already anxious about doing this whole six weeks without any food, this isn’t helping.”
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Elemental, my dear Louise
Read MoreI had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much since the beginning of May. I started to feel unwell soon after my last Infliximab infusion but put it down to the stress of finding a new job and being unhappy at being at home […]
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Pause
Read MoreThings have been pretty good lately. So good in fact, that its difficult to cast my mind back to a time when I was unwell and feel pretty rubbish. The infliximab has really been keeping my Crohn’s under control and I’ve hardly had any reoccurrence of my liver / hernia problems in the past couple […]
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Professional ‘help’; here we go again
Read More… I sat there, in the unused doctors room, filling in paperwork with a counsellor. I pause before all the sentences, wondering where my stupid emotions fall on the scale of 0 to 5. I think about how bad I feel about who I am, how I behave and wonder if I will ever stop […]
Latest Posts
REPOST: From the #YCArchives - Do I Consider Myself Disabled? https://youngcrohns.co.uk/blog/crohns/do-i-consider-myself-disabled/?utm_source=ReviveOldPost&utm_medium=social&utm_campaign=ReviveOldPost #repost #adventureswithachronicillness #youngcrohns #healthblogger
22% done with The Body, by Bill Bryson https://goodreads.com/user_status/show/336876511
REPOST: From the #YCArchives - Vedolizumab – Two Years On https://youngcrohns.co.uk/blog/medication/vedolizumab-two-years-on/?utm_source=ReviveOldPost&utm_medium=social&utm_campaign=ReviveOldPost #repost #adventureswithachronicillness #youngcrohns #healthblogger
Happy #stomaversary to @sonyagoins1 🎊🥳
Wishing @sonyagoins1 all the best for surgery today! You’ll be welcomed to the #ostomy club with arms wide open. 🥰🥰🥰🥰
I have to say Bill Bryson’s epic non fiction “The Body” is wonderful. It’s a long read - almost 600 pages! - but I do enjoy every word. He has a flow that just works.