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💗 • • • #adventureswithachronicillness #m 💗 • • • #adventureswithachronicillness #motivationmonday #mindfulmonday #grattitudemonday #mondaymotivation #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd #ittakesguts #nocolonstillrollin #ostomywarrior
I am really tired. ⁠ ⁠ I’m tired of being at I am really tired. ⁠ ⁠ I’m tired of being at the hands of multiple consultants for multiple departments for multiple issues.⁠ ⁠ I’m tired of fighting my body.⁠ I’m tired of trying to see the positives in all these sh*tty things.⁠ I’m tired of never having a break.⁠ I’m tired of it being one thing, then another and another until I’m snowed under.⁠ ⁠ I am tired of this.⁠ ⁠ ⁠ ⁠ Most people would call this a breaking point but this is how it is some days with chronic illness. When issues come all at once; one after another like a line of buses. You don’t get used to these things happening, but you get better at distracting yourself from them.⁠ ⁠ I find this - the feeling of overwhelm and lack of fight - hardest to deal with. I know it won’t last but right now, I’m knackered from fighting myself.⁠ ⁠ ⁠ •⁠ •⁠ •⁠ #adventureswithachronicillness #invisibleillnessawareness #chronicillness #noteverydisablityisvisible #butyoudontlooksick #disabilityawareness #itsokaytonotbeokay
⚡️WHAT ARE INFUSIONS LIKE?💭⁠ ⁠ Let's Ta ⚡️WHAT ARE INFUSIONS LIKE?💭⁠ ⁠ Let's Talk About… 🗣️ IBD INFUSIONS⁠ ⁠ ⁠ For *almost* all the years I've had Crohn's disease, I've received biologic treatment. I just didn't respond to more traditional oral medications 🤷🏼‍♀️⁠ ⁠ Here we are, almost ten years in, and I've lost count of the number of infusions I've had of Infliximab and Vedolizumab.⁠ ⁠ At least every 8 weeks, I attend the hospital for my infusion and it's become routine and second nature to me. I take snacks 🍱 I bring a book 📖 and I'm happily left alone. I think despite my shocking veins, I'm a chilled-out patient; or at least I like to think I am! ⁠😉⁠ ⁠ So, what are infusions like? Do they hurt? What can I expect if I need to switch to a biologic? ⁠ ⁠ Read the full blog post via the link in my profile @louisehelenhunt⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ #adventureswithachronicillness #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd #biologics #vedolizumab #infliximab #ibdmedication #infusions #ivinfusions #cannulas⁠ ⁠ ⁠
To anyone who's experiencing setbacks.⁠ To anyon To anyone who's experiencing setbacks.⁠ To anyone who's fallen down.⁠ To anyone who's feeling like 'it' isn't enough.⁠ To anyone who is just a bit fed up of fighting. ⁠ To anyone who is losing faith.⁠ ⁠ "Be proud of how hard you are trying."⁠ ⁠ ⁠ 🧡🧡🧡⁠ •⁠ •⁠ •⁠ #adventureswithachronicillness #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #crohndisease #crohns #ostomyawareness #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #letstalkibd #ostomy #nocolonstillrollin #ostomylife #ostomywarrior #stoma #ostomyblogger #stomawareness #stomastigma
I am stepping up for stomas 💚💜⁠⁠ ⁠⁠ I am stepping up for stomas 💚💜⁠⁠ ⁠⁠ September will be my fifth year with a stoma; my lifesaver. I have lived with Crohn's disease for double that time but these last five have been much much easier, mostly down to my stoma.⁠⁠ ⁠⁠ I used to think having a stoma was 'the worse thing I could go through' but it turned out to be the most liberating and freeing thing I have had done.⁠⁠ ⁠⁠ I want to show that having a stoma does not negatively affect your ability to do exactly what you want to do. It does *not* hold you back. ⁠⁠ ⁠⁠ So walk with me - or run, swim, jog or skip - throughout September to raise awareness of stomas and help @colostomyuk continue their campaigns. ⁠⁠ ⁠⁠ ⁠⁠ You can donate via my profile: @louisehelenhunt ⁠😘⁠⁠ ⁠⁠ ⁠⁠ #StepUpForStomas #TeamColostomyUK #ColostomyUK #adventureswithachronicillness #ostomyawareness #nocolonstillrollin #ostomylife #ostomywarrior #stomastigma #nocolonclub #barbiebuttgang
⚡️WHAT DOES AN ENDOSCOPY FEEL LIKE?💭⁠ ⁠ ⚡️WHAT DOES AN ENDOSCOPY FEEL LIKE?💭⁠ ⁠ Let's Talk About… 🗣️ ENDOSCOPY⁠ ⁠ Doctors love to see how IBD looks in all its wonderful stages - diagnosis, remission and flare-ups - with endoscopy. This is a camera 📹 up the bum or down the throat, depending on your disease location.⁠ ⁠ They are the GOLD 🏆 standard for diagnosing IBD because they can take small samples of tissue called 'biopsies' 🔬for detailed pathology. Visually, they can see IBD better here than on any scan.⁠ ⁠ But for patients, it's not exactly a pleasant experience [what hospital procedure is, though?] so I get asked a couple of common questions 💬 each time I have one: ⁠ ⁠ ⁠ IS IT PAINFUL? 😖 It should not be painful just uncomfortable. They make you drowsy with sedation and can give relaxants and pain relief during the procedure.⁠ ⁠ WHAT IS RECOVERY LIKE?⁠ 😵‍💫 Sedation makes you groggy. Rest, take things very easy and don't go back to your normal routine for a day or two. Otherwise, you are just sore. ⁠ ⁠ HOW DO YOU MANAGE THE PREP?⁠🤢 My top tips for doing the prep back when I had my colon:⁠ 🔹Make it cold!⁠ 🥶 🔹Make it hours in advance⁠ ⏱ 🔹Add a flavoured squash you don't really like to make it palatable but forgettable 🧃 🔹Have extra bathroom supplies handy!⁠ 🧻 🔹Remember to hydrate in between 💦 - bowel prep flushes everything from your bowel and can leave you dehydrated.⁠ ⁠ ⁠ My last endoscopy was in early May. This one went through my stoma 🔴 [my first one!] and it was still just the same experience as I remember from my very first back in 2011. The NHS do thousands of these procedures and are very good at these. You are in good hands.⁠ ⁠ ⁠ Please share & tag, save and comment to spread the word!⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ #adventureswithachronicillness #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd #endoscopy #diagnostic #ileoscopy #colonoscopy #sigmoidoscopy
"You are not weak for needing time to sort through "You are not weak for needing time to sort through this."⁠ ⁠ ⁠ ⁠It's okay if it's taking you a while to get back out there; into society and life since lockdown restrictions have eased.⁠ ⁠ It's okay if you feel overwhelmed but unsure of what to do. ⁠ ⁠ It's okay to be cautious.⁠ It's okay to continue to wear your mask. ⁠ It's okay to say no. ⁠ And it's also okay to not want to talk about it.⁠ ⁠ ⁠ ⁠ ⁠ 🧡🧡🧡⁠ •⁠ •⁠ •⁠ #adventureswithachronicillness #wisequotes #wisequotesforlife #wisewordstoliveby #wordsofwisdom #wordstoponder #wordstoinspire #ibdawareness #crohndisease #crohns #ostomyawareness #ibdwarrior #ulcerativecolitis #crohnsandcolitis #invisibleillnessawareness #chronicillness #ibdlife #ibdblogger #inflammatoryboweldisease #ittakesguts #letstalkibd #ostomy #nocolonstillrollin #ostomylife #ostomywarrior #stoma #ostomyblogger #stomawareness #stomastigma
I've spoken about the mysterious and overwhelming I've spoken about the mysterious and overwhelming beast that is FATIGUE before but GOSH, it is probably one of my biggest issues with having IBD right now. ⁠ ⁠ While I work very proactively to look after myself and respect the heck out of my condition, I just can not begin to describe how much fatigue frustrates me. ⁠ ⁠ There is no real fix⁠ There is no medication for it⁠ There is only time, patients and rest. ⁠ ⁠ Most of my fatigue comes from not having my terminal ileum - the join between small and large bowel, around where your appendix is - after my surgery in 2016. I received a B12 injection every ten weeks to help my body compensate but even that sometimes isn't the best. ⁠ ⁠ Despite being tired, I usually can't sleep. And even when I do, sleep is not enough to relieve my symptoms. ⁠ ⁠ I've learnt over the last five years to:⁠ ⁠ 📓 Schedule my B12 injections on time!⁠ ⏰Set a reminder a fortnight before it that the fatigue train is coming...⁠ ♥️ Practice more self-love and care during this time⁠ 🤸🏻‍♀️ Plan my activities around this⁠ ⁠ ⁠ Please share & tag, save and comment to spread the word!⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ •⠀⠀⠀⠀⁠ #adventureswithachronicillness #ibdawareness #crohnsdisease #crohns #ibdwarrior #invisibleillnessawareness #chronicillness #inflammatoryboweldisease #letstalkibd #fatigue
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