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It's #crohnscolitisawarenessweek in the UK from De It's #crohnscolitisawarenessweek in the UK from Dec 1-7 and I'm sharing ✨four✨ of the most important changes I've experienced having #crohndisease ⁠ ⁠ My appearance has changed many times over the years, for various reasons and is a big aspect of how I perceive myself on a daily basis. ⁠ ⁠ I'd be told I looked 'great' and 'well' when I'd lost a lot of weight but I was actually very sick. Looks can be very deceiving. ⁠ ⁠ How do you deal with comments about your appearance? Let me know in the comments! ⤵️⁠ ⁠ -⁠ -⁠ -⁠ #adventureswithachronicillness ⁠ #ibdawareness ⁠ #crohnsdisease ⁠ #crohns ⁠ #ibdwarrior ⁠ #invisibleillnessawareness ⁠ #chronicillness ⁠ #inflammatoryboweldisease ⁠ #letstalkibd
𝕀𝕥 𝕕𝕖𝕗𝕚𝕟𝕒𝕥𝕖𝕝𝕪 𝕀𝕥 𝕕𝕖𝕗𝕚𝕟𝕒𝕥𝕖𝕝𝕪 𝕗𝕖𝕖𝕝𝕤 𝕝𝕚𝕜𝕖 𝕎𝕚𝕟𝕥𝕖𝕣 𝕥𝕠𝕕𝕒𝕪 𝕚𝕟 𝕥𝕙 𝕌𝕂! 🥶 These are some of my favourite parts of Winter; the wreaths, trees, boots and cookies make me very happy. Even if I am a complete Autumnal girl, Winter does make things feel a little special. What would you add to your own list? Have you begun Christmas decorating or does it have to be a December thing? 🎄 - - - #adventureswithachronicillness #invisibleillnessawareness #chronicillness #noteverydisablityisvisible #butyoudontlooksick #disabilityawareness #itsokaytonotbeokay
Today I'm heading into the hospital for a planned Today I'm heading into the hospital for a planned admission. ⁠ ⁠ I'm going to be there for roughly three weeks, something I haven't had to do for many years. ⁠ ⁠ It takes a lot to get organized for an admission of this length, so what am I taking with me?⁠ ⁠ 📌 cosy pairs of PJs⁠ 📌 skin & hair care⁠ 📌 plenty of undies!⁠ 📌 phone & charger⁠ 📌 kindle and/or embroidery⁠ 📌 all of my repeat medications⁠ 📌 sleep mask & headphones⁠ 📌 blanket/home comforts⁠ 📌 loungewear⁠ ⁠ I've not had this sort of surgery before, but this is what I'm sort of expecting to need. Maybe it will change, who knows!? 🤷🏼‍♀️⁠ ⁠ ⁠ Let me know in the comments what helps you the most whilst being in hospital ⤵️⁠ ⁠ -⁠ -⁠ -⁠ #adventureswithachronicillness ⁠ #ibdawareness ⁠ #crohnsdisease ⁠ #crohns ⁠ #ibdwarrior ⁠ #invisibleillnessawareness ⁠ #chronicillness ⁠ #inflammatoryboweldisease ⁠ #letstalkibd
⚡️WHAT DOES FATIGUE FEEL LIKE?💭⁠ ⁠ I ca ⚡️WHAT DOES FATIGUE FEEL LIKE?💭⁠ ⁠ I can't really remember a time when I wasn't tired. ⁠ ⁠ And not just "oh, a nap would be nice" or even "a lie it would really restore me" but then overwhelming fuzzy brain fog that comes with fatigue. A nap or lie in *won't* completely solve that sort of tiredness.⁠ ⁠ But apart from a foggy feeling, what does fatigue feel like?⁠ ⁠ It can be:⁠ 🌀 headaches⁠ 🌀 muscle weakness⁠ 🌀 impaired decision-making and judgement⁠ 🌀 dizziness⁠ 🌀 slowed reflexes and responses⁠ and many more.⁠ ⁠ Fatigue is not to be underestimated! It can have serious effects on concentration, motor skills and memory. ⁠ ⁠ Click linkin.bio for the full article ➡️ @louisehelenhunt⁠ ⁠ -⁠ -⁠ -⁠ #adventureswithachronicillness ⁠ #ibdawareness ⁠ #crohnsdisease ⁠ #crohns ⁠ #ibdwarrior ⁠ #invisibleillnessawareness ⁠ #chronicillness ⁠ #inflammatoryboweldisease ⁠ #letstalkibd
"𝕎𝕙𝕒𝕥 𝕕𝕠 𝕪𝕠𝕦𝕣 𝕞𝕠𝕣𝕟𝕚𝕟𝕘𝕤 𝕝𝕠𝕠𝕜 𝕝𝕚𝕜𝕖 𝕨𝕚𝕥𝕙 𝕒𝕟 𝕠𝕤𝕥𝕠𝕞𝕪?" Getting a stoma meant my routines changed from day one. And it does take a while to get into the swing of things, to build that new relationship and to fit it into what you also need to do. But mornings are so much easier these days! No more long moments 💩 on the toilet! No more butt burn! No more pain and urgency! No more being late! This ⤴️ is what my mornings normally look like. And as you can see, dealing with my bag is just one small step, usually always first. I will guarantee I wake up with a full bag each morning without fail! 😅 𝔻𝕠 𝕪𝕠𝕦 𝕕𝕠 𝕒𝕟𝕪𝕥𝕙𝕚𝕟𝕘 𝕕𝕚𝕗𝕗𝕖𝕣𝕖𝕟𝕥 𝕠𝕟 𝕥𝕙𝕚𝕤 𝕝𝕚𝕤𝕥? - - - #adventureswithachronicillness #ostomyawareness #nocolonstillrollin #ostomylife #ostomywarrior #stomastigma #nocolonclub #barbiebuttgang
Just a reminder that even when it’s not visible Just a reminder that even when it’s not visible to others, the battles you face are still valid. I see you. I feel you 💜 Tag a chronically ill friend who who would appreciate this! - - - #adventureswithachronicillness #invisibleillnessawareness #chronicillness #noteverydisablityisvisible #butyoudontlooksick #disabilityawareness #itsokaytonotbeokay
It is no secret, I love Autumn. It's the crisp air It is no secret, I love Autumn. It's the crisp air, the bonkers beautiful sunsets and that nip that makes your ears a little tingly when you set outside for the first time that day.⁠ ⁠ But I also love the cosy feelings of self-care during this time. When it does get too dark for my liking - like right now - I relish time spent with a hot drink, reading a new book with a wax melt or candle on. ⁠ ⁠ Taking some time for me, being peaceful and relaxed is something I priorities more and more each year that passes. ⁠ ⁠ ⁠ Do you do anything different on this list?⁠ Let me know below ⤵️⁠ ⁠ ⁠
#adventureswithachronicillness #wordsofwisdom #wor #adventureswithachronicillness #wordsofwisdom #wordstoliveby #quoteoftheday #quotestoliveby
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