Yesterday was very interesting. I am very used to being at the hospital, the regularity of my clinic appts and my ‘need’ for blood tests within the NHS trust system, I’m there at least once a week some weeks. That being said, it was extremely nerve-wracking waiting to be called into the infusion room. With my regular IBD nurse off sick at the moment, I was handed over to her…
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A bag of nerves
So, tomorrow is my first Inflixmab infusion. This is my second and final attempt at a biological treatment for my Crohn’s Disease. Last December the decision was made, after much discussion and scoping, that I was to stop Humira. I was feeling a mixture of relief and freedom. No more fortnightly injections, no more struggling to get through a 14 day cycle, no more crappy immune system, I could finally…
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“What a waste of my time”
“What a waste of my time” : something I’d spent most of last week, in the aftermath of my routine clinic appointment, saying to myself. I attended the hospital last Tuesday, after hearing of my approval by my current consultant, his replacement and my IBD nurse for me to start Infliximab, for my already scheduled appointment. I was under the impression, from all the conversations me and my nurse had…
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Infliximab
Yesterday I got the call that will hopefully start to change my Crohnie life again. My IBD nurse confirmed that the GI GMT have successfully approved me for Infliximab. I go back to the hospital next Tuesday for a “routine” clinic appointment to fix my first infusion date, after my bloods, TB test and chest X-ray. I had had an god awful day at work. Short staffed, in pain and…
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Double jab
After the eventfulness of last week, this week I had scheduled my Wisdom Tooth Extraction and my annual flu jab. Given my recent – last two years, recent – entrance into the world of needles and procedures and all ‘nasty’ medical things, you would think I would more than okay with a local anesthetic in my gum and jaw, but apparently not. I back out of my extraction only moments before…
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Welcome Home
With another hiatus come and gone, its time to start writing again. Since my last post, I’ve spent two separate nights in A&E with Crohn’s related pains. Since then, I’ve been without any real help, it has been weeks and weeks of pain and frustration. That was up until the start of September when I was working too much, too hard, and I had a flare up. I struggled on,…
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2012 – Year in Review
We’re here, the final day of 2012, and I am sat realising that this past year has flown by yet again. That feeling doesn’t surprise me, but the lack of fear I have about the year coming up does. I started 2012 extremely unprepared. I had just finished a couple of weeks stint in the hospital, had just started Humira – yes, its been a whole 12 months of needles…