Just… *exhales and sighs*

I feel rotten today. I spent Tuesday afternoon onwards at my boyfriends house. I don’t spend alot of time there because of recent problems I’ve had with my Crohn’s, its easier to be at home. But we had a night and a day off together so decided to spend it together. And even though we have been together for almost 4 years now, I still don’t feel comfortable enough to just get up and walk to the loo and be gone, for sometimes ages; whenever he lives. Even when my Crohn’s is going through a good patch; which now definitely…

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February 2016

February, boy has it been a turbulent one, on the health front. For the past couple of bleary months, I’d been expecting my treatment plan to fail. I was looking at a last chance saloon with Vedolizumab as soon as I started it way back in October, but to have it official fail on February 5th was abit of a shock. It meant I had to kick my butt into gear and get something else sorted. Which had to be something I had yet to try, something outside the realms of conventional medical therapy. I should have known it would…

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This time last year…

.. I was experiencing my first really serious bout of “on-medication-but-feeling-as-if-I’m-going-without”. I had just completed my first year of Infliximab and I’d made it through Christmas. Boyfriend and I had plans to get away for the February break and picked Cornwall for a week’s holiday. I would have my infusion at the start of Feb and that would usually keep me going for at least a month. Oh how foolish I feel now. February 2015 was horrible. I would still have my Infliximab but I had lost total response to it; I wouldn’t be tested and know this for sure until…

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January 2016

The beginning of the year is always difficult. I have, for the years I’ve been diagnosed with Crohn’s Disease, been able to avoid any major problems at the festive period; even when I was first diagnosed and just having started Humira without a clue how amazing it would be. So I came into January unsure; of what this whole year would bring me, how quickly I would find a new treatment plan and how rubbish I would have to feel to get to that point. On NYE I got my appointment to see a surgeon to discuss – very briefly…

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March Madness & MXT

he described my antibodies as thus; “there is a limit of 200 on the scale, you are *way* above it”. Simply put, my body is fighting the drug, as soon as it comes into my system.

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