XOXO

We sat in the car, driving to the hospital. Nothing unusual in that; we often drive to the hospital. But I sat there wondering why he was so okay with taking me there. When did it become so normal for us to be going there because I had an appointment, needed blood taking, was having a medication given or needed to collect something from my IBD team? When did my invisible illness become such a huge unspoken part of our relationship? When we met I was just months in to my diagnosis. He met me on a night out some…

Share:

Unhappy and Empty.

I’ve been without my blog for two months. And those two months have been possibly my worse for a long time. I came back from holiday and returned to work. My support group has gone officially live. I’ve taken two new Crohn’s medications, four rounds of antibiotics, packets of painkillers, becoming slightly dependent on Tramadol and felt so utterly depressed, alone and isolated I don’t know what to do with myself. So I am turning to writing to help soothe the cracks in my mind and in my heart. On the most simple level of feeling, I am tired. I’m tired…

Share:

Day Twenty Two – Day-to-Day

Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. Write about the things you couldn’t live without – list 10 things you need or love most. I’m not sure about anyone else, but I felt – and some times, still do – feel incredibly lonely ‘suffering’ with my Crohn’s. It as if once I get a hold on things, some thing comes along and knocks me sideward and upset the balance. And its taken, and does take, alot of strength to remain in control and keep the balance tipped slightly in my favour. That undeniable,…

Share:

What a week, what a waste.

Crohn’s Disease forces alot of people to cease the day and carpe the diem out of the days they have when they feel well enough to function normally. I never used to be one of those people; I suffered greatly with my depression and my acceptance of my diagnosis. These days, I try to do my best to manage my time and disease as best I can. For the most part, I succeed. I have a job and two volunteer positions. I like alot of what I do and what I find out through doing those things. I enjoy learning,…

Share:

Oh my sore arse. Thanks Pred.

I’m now deep into the second week of Prednisolone. It is a monster. Pred is an IBD basic. Corticosteroids are used to treat any and all inflammation of the digestive tract. They are usually oral tablets, as shown above, and are used a long term course of treatment in early stages of IBD diagnosis and in the start of and / or mist of a flare up. They override the natural system of cortical hormones your body creates in your adrenal gland. The treatment course is set out my GI and / or IBD nurse and patient. Typically, they last…

Share:

Looking for Something?