Colorectal Surgical Consult – 11.04.16

So yesterday was my second appointment with the bowel surgeon at my hospital where my IBD is treated. After a positive GI clinic appointment last week – which you can ready about here – I was in two minds to expect a date for said surgery – a limited bowel resection – so soon; at the very least I was…

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GI Clinic – 05.04.16

It has already been six weeks since I was last in clinic to see my consultant. What’s happened since then? My colonoscopy has been performed and the outcome known by medical and surgical teams at Good Hope as well as the specialist consultant in Nottingham. I have finished up my course of steroids. I’ve been having considerable pain when eating…

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This time last year…

.. I was experiencing my first really serious bout of “on-medication-but-feeling-as-if-I’m-going-without”. I had just completed my first year of Infliximab and I’d made it through Christmas. Boyfriend and I had plans to get away for the February break and picked Cornwall for a week’s holiday. I would have my infusion at the start of Feb and that would usually keep…

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I am scared.

“So I am scared of all of this. That I’m trying so hard to get some control of everything, I’m trying to not be angry but being angry is all I can feel. “

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Oh. Oh dear..

“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”

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GI Clinic – 21.07.15

“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”

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Infliximab #12 – The Worries of a Troublesome Colon Pt.1

“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”

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Infliximab #11 – Ongoing Troubles…

“I just know that who I am now, isn’t who I want to be. This is not the quality of life I am willing to settle for. So maybe I need to make a strong and powerful decision that will benefit me in the long run.”

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