Sunday; the night before

Feeling nervous about tomorrow’s appointment at the surgical clinic. Want to have it all booked and sorted so I know what I’m working towards this Summer but really dreaded it finally being in black and white. *** I know this is the best option right now. In fact, it’s sort of my only option right now. I’ve failed everything else, and even though the combination of biological drugs have made my colon better in the past twelve months, my terminal ileum is a mess. And it needs to come out so I can move forward; in so many ways! With…

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World IBD Day

As this ordinary Monday comes to a close to many, I sit here going into the final few GMT hours of World IBD 2014 with some unrest. Should I show them? No one has seen these before, I’ve not allowed myself to bear these photos to other humans, not even other IBDers.. what am I scared of? What am I afraid of, apprehensive about? Why not be brave and share you, Louise? Yes, I even full first named myself, that’s how much of an indecision this is. But, I want to show people what IBD can do to you, of…

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#GetYourBellyOut

It is always great to see a social media campaign get a startling, yet thoroughly deserved coverage and support sorely needed for IBD. Campaigns for IBD here in the UK haven’t always kicked off the way those behind or supporting it have wanted. There is some professional jealousy, as to why IBD still does hasn’t achieved the publicity and awareness it is currently lacking. This campaign though, #GetYourBellyOut follows in the footsteps of Cancer Research’s #NoMakeUpSelfie from March 2014 – in which females posted make up free pictures of themselves and nominated female friends to join in spreading awareness of…

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Day Twenty Two – Day-to-Day

Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. Write about the things you couldn’t live without – list 10 things you need or love most. I’m not sure about anyone else, but I felt – and some times, still do – feel incredibly lonely ‘suffering’ with my Crohn’s. It as if once I get a hold on things, some thing comes along and knocks me sideward and upset the balance. And its taken, and does take, alot of strength to remain in control and keep the balance tipped slightly in my favour. That undeniable,…

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It’s finally time..

.. to raise some funds and some eyebrows. I’ve always been abit confused as to why people fundraised for charities. Alot of people did it whilst I was at school and university and I was always too busy with studying to get down and into it. As with everything else in my life, Crohn’s has changed many aspects of it and has forced me to change my ways in so many respects. For the past year, as I battled my way into remission and subsequently out of it in the New Year, I became restless. I needed something new to…

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