What a week, what a waste.

Crohn’s Disease forces alot of people to cease the day and carpe the diem out of the days they have when they feel well enough to function normally. I never used to be one of those people; I suffered greatly with my depression and my acceptance of my diagnosis. These days, I try to do my best to manage my time and disease as best I can. For the most part, I succeed. I have a job and two volunteer positions. I like alot of what I do and what I find out through doing those things. I enjoy learning,…

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Oh my sore arse. Thanks Pred.

I’m now deep into the second week of Prednisolone. It is a monster. Pred is an IBD basic. Corticosteroids are used to treat any and all inflammation of the digestive tract. They are usually oral tablets, as shown above, and are used a long term course of treatment in early stages of IBD diagnosis and in the start of and / or mist of a flare up. They override the natural system of cortical hormones your body creates in your adrenal gland. The treatment course is set out my GI and / or IBD nurse and patient. Typically, they last…

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Day Twenty Seven – 5 Challenges & 5 Small Victories

5 Challenges & 5 Small Victories. Make a list of the 5 most difficult parts of your health focus. Make another top 5 list for the little, good things (small victories) that keep you going. CHALLENGES – Fatigue / Insomnia: For me these two things are inter linked. I get tired more as my Humira wears off. But as that happens, I find myself sleeping less and less. It is horrible self fulfilling prophecy. These last few days haven’t been too bad sleep wise – I’ve actually managed a couple nights of decent sleep – but today, the fatigue is back. And I…

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Breaking the cycle..

Any Crohnies out there suffer with Insomnia? Put those hands up! I can most definitely raise my hand to this. In fact, some days it gets so bad, I think it needs two hands. Before I got sick (my god, how often does this phrase come out of my mouth of late? I’ve had so much explaining to do, to new people, to clear up awkward silences.. but more on that tomorrow) I was away at university for four years. I could easily get away with just a couple hours sleep a night before being able to start again. Most…

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