#IBD Hour – Biological Treatments

Tonight I hosted the #IBDHour chat on Biological Treatments. In the last six years since I was diagnosed, I have found that I respond best to biological medications; which have given me good quality of life (QoL) and the ability to be closely monitored and managed by my IBD teams. In this post, I’ll answer – at length, because 240…

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Colorectal Surgical Consult – 11.04.16

So yesterday was my second appointment with the bowel surgeon at my hospital where my IBD is treated. After a positive GI clinic appointment last week – which you can ready about here – I was in two minds to expect a date for said surgery – a limited bowel resection – so soon; at the very least I was…

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This time last year…

.. I was experiencing my first really serious bout of “on-medication-but-feeling-as-if-I’m-going-without”. I had just completed my first year of Infliximab and I’d made it through Christmas. Boyfriend and I had plans to get away for the February break and picked Cornwall for a week’s holiday. I would have my infusion at the start of Feb and that would usually keep…

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I am scared.

“So I am scared of all of this. That I’m trying so hard to get some control of everything, I’m trying to not be angry but being angry is all I can feel. “

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Infliximab #14 – The final one :(

“I’m willing to give it a whirl but how much of this is just putting off the somewhat inevitability of surgery? Its the big unknown and the big elephant in the room.”

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Oh. Oh dear..

“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”

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GI Clinic – 21.07.15

“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”

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Infliximab #13 – Not so unlucky for me!

“I take it as a win. The sniffles are a small price to pay for 7 weeks of good bowel behaviour in my eyes.”

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