Double Check Up – 22.09.16

We spent the morning traveling across the city to Queen Elizabeth Hospital (QE) for my liver check-up. I’ve been attending this particular clinic for almost three years since some routine blood tests revealed very high liver function results. Given my complicated IBD history, I’ve been seeing the head of the department, a Professor; and had lots more blood work done…

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The road to Vedolizumab

“The best I can do is just hope for the best and deal with the worse, if and when it shows up.”

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GI Clinic – 21.07.15

“she – and many others – don’t understand how much of an emotional battle IBD can be. It can be hard to switch your mind off from what is going on, or what could happen… mentally preparing myself, is part and parcel of my disease.”

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Infliximab #5

Another eight weeks have passed..   Another Monday lunchtime spent at the hospital, this time only for two hours; a one hour infusion followed by a hour of observations. As always, there were problems prior to the infusion, discussed before the weekend in “Spring Forward” concerning my liver but after being given the green light to attend, I turned up,…

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Day Twelve – Hindsight

 If you could go back in time and talk to yourself (or your loved one) on the day of diagnosis, what would you say? What have you learned about being a patient / caregiver that has surprised you most? If.. If I could go back. Would I want to? Too little time has passed for me to be feel the…

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