My Love for You, Dear Stoma…

Today we celebrate love. A single day devoting to telling whomever we love, that we love them. We shower them with gifts, affection and kind words. I am doing that today too. But for my stoma. Yes, you read that correctly; my stoma. My stoma used to be that elephant in the room, the alien living under my top, a living and breathing weird little thing.  These days, whilst she is still living under my clothes, covered by my ostomy bag; she is a living and breathing embodiment of my disease. I have Crohn’s disease and she saved me. She gave…

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Open Letter: Stoma Bag Change

Despite doing my own research prior to my ostomy surgery, nothing really can prepare you for changing your bag for the first time. Let alone the hundredth or whatever. I sat removing my leaky bag earlier on, remembering my first bag change when I felt in control. It must have been a couple months post op when I wasn’t afraid of looking at it or feeling it. I’d gotten use to that idea quite quickly. But the soreness and uncomfortableness; that took a couple months to settle, as my stoma dropped in size, my abdomen changed shape and I started…

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XOXO

We sat in the car, driving to the hospital. Nothing unusual in that; we often drive to the hospital. But I sat there wondering why he was so okay with taking me there. When did it become so normal for us to be going there because I had an appointment, needed blood taking, was having a medication given or needed to collect something from my IBD team? When did my invisible illness become such a huge unspoken part of our relationship? When we met I was just months in to my diagnosis. He met me on a night out some…

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