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Young Crohn's

Adventures with a Chronic Illness

Nottingham GI Clinic – 14.09.16

Nottingham GI Clinic – 14.09.16

At least three months overdue, rearranged twice during my extended post op recovery; we finally made the trip to Nottingham to…
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This time last year…

This time last year…

.. I was experiencing my first really serious bout of “on-medication-but-feeling-as-if-I’m-going-without”. I had just completed my first year of Infliximab…
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Vedo #5 – The Finale

Vedo #5 – The Finale

Despite my best efforts, it seems my current run of Vedolizumab is over. This is what happened at the turn…
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January 2016

January 2016

The beginning of the year is always difficult. I have, for the years I’ve been diagnosed with Crohn’s Disease, been…
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Nottingham: Moran and Multiple Choices – 27.01.16

Nottingham: Moran and Multiple Choices – 27.01.16

I’ve never seen a different gastroenterologist in a different hospital before. I was full of anxiety and fear of being…
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The end of Biologics: Colorectal Referral – 12.01.16

The end of Biologics: Colorectal Referral – 12.01.16

I saw a surgeon last week. I’ve had Crohn’s for almost four and a half years but this is the…
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Vedolizumab #1 & #2 – Do I dare hope..?

Vedolizumab #1 & #2 – Do I dare hope..?

“The biggest thing today was how much care and attention I receive from my IBD team. And I really need to fight to keep that the same; given the NHS Trust’s changes.. “

Infliximab #12 – The Worries of a Troublesome Colon Pt.1

Infliximab #12 – The Worries of a Troublesome Colon Pt.1

“Considering how unwell I had been feeling, and in hindsight, how unwell I would continue to feel once starting it, I didn’t get told (or I didn’t ask, either one) what to really expect”

Elemental, my dear Louise

Elemental, my dear Louise

I had put off contacting my IBD nurse for weeks and weeks. Things were steadily going down hill, pretty much…
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