10 Festive Tips for Eating and Enjoying Yourself at Christmas with …

Christmas 2017 marks my second festive period with my stoma. Last year, I was just four months into my journey of being ostomate and it felt too soon to give any tips. I was seeing how I coped; seen as it was a new year and not only did I have my stoma to consider but also my IBD. This year, I…

Share:

The “What is a Stoma?” Series – Part III

Welcome to Part III in my new blog series on “What is a Stoma?”  This instalment covers the question of what exactly having a stoma feels like, possible diet & lifestyle changes, potential complications and considerations of living with a stoma and where to get access to support & advice for coping with having a stoma. The information below I…

Share:

February 2016

February, boy has it been a turbulent one, on the health front. For the past couple of bleary months, I’d been expecting my treatment plan to fail. I was looking at a last chance saloon with Vedolizumab as soon as I started it way back in October, but to have it official fail on February 5th was abit of a…

Share:

Pre-Scope Assessment – 26.02.16

So today is my pre assessment for my colonoscopy which is taking place on March 8th. What is a pre assessment appointment? “Patients attending for a Colonoscopy procedure are seen by a pre assessment nurse prior to the date of their procedure. At this appointment the pre assessment nurse takes information from you and advises you how to prepare for…

Share:

Oh. Oh dear..

“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”

Share:

Overdue: Infliximab #3

Infusion #3 was by far the best of the three. Regardless of the cold and the coughing, I went off to the hospital, arrived and met my IBD nurse. Knew that the team had talked about my status and would have decided by the time I got into the infusion room if I was receiving it. Knew if I would…

Share:

Double jab

After the eventfulness of last week, this week I had scheduled my Wisdom Tooth Extraction and my annual flu jab. Given my recent – last two years, recent – entrance into the world of needles and procedures and all ‘nasty’ medical things, you would think I would more than okay with a local anesthetic in my gum and jaw, but apparently…

Share:

Day Twenty Seven – Titles

If you wrote a book about your life, your community, your condition, or your Health Activism – what would you title it? Come up with 5 working titles. What about your biography? BUTT OUT – THE ULTIMATE GUIDE TO DEAL WITH IGNORANT AND UNEDUCATED QUERIES ABOUT IBD / INVISIBLE ILLNESS. Too much? Too sarcastic? I feel as if not enough…

Share:

Looking for Something?