10 Festive Tips for Eating and Enjoying Yourself at Christmas with …

Christmas 2017 marks my second festive period with my stoma. Last year, I was just four months into my journey of being ostomate and it felt too soon to give any tips. I was seeing how I coped; seen as it was a new year and not only did I have my stoma to consider but also my IBD. This year, I…

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The “What is a Stoma?” Series – Part III

Welcome to Part III in my new blog series on “What is a Stoma?”  This instalment covers the question of what exactly having a stoma feels like, possible diet & lifestyle changes, potential complications and considerations of living with a stoma and where to get access to support & advice for coping with having a stoma. The information below I…

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February 2016

February, boy has it been a turbulent one, on the health front. For the past couple of bleary months, I’d been expecting my treatment plan to fail. I was looking at a last chance saloon with Vedolizumab as soon as I started it way back in October, but to have it official fail on February 5th was abit of a…

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Pre-Scope Assessment – 26.02.16

What is a pre assessment appointment? “Patients attending for a Colonoscopy procedure are seen by a pre assessment nurse prior to the date of their procedure. At this appointment the pre assessment nurse takes information from you and advises you how to prepare for the procedure. He / she will also give you the bowel cleansing medication and discuss your…

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Oh. Oh dear..

“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”

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Overdue: Infliximab #3

Infusion #3 was by far the best of the three. Regardless of the cold and the coughing, I went off to the hospital, arrived and met my IBD nurse. Knew that the team had talked about my status and would have decided by the time I got into the infusion room if I was receiving it. Knew if I would…

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Double jab

After the eventfulness of last week, this week I had scheduled my Wisdom Tooth Extraction and my annual flu jab. Given my recent – last two years, recent – entrance into the world of needles and procedures and all ‘nasty’ medical things, you would think I would more than okay with a local anesthetic in my gum and jaw, but apparently…

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Day Twenty Seven – Titles

If you wrote a book about your life, your community, your condition, or your Health Activism – what would you title it? Come up with 5 working titles. What about your biography? BUTT OUT – THE ULTIMATE GUIDE TO DEAL WITH IGNORANT AND UNEDUCATED QUERIES ABOUT IBD / INVISIBLE ILLNESS. Too much? Too sarcastic? I feel as if not enough…

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