10 Festive Tips for Eating and Enjoying Yourself at Christmas with …

Christmas 2017 marks my second festive period with my stoma. Last year, I was just four months into my journey of being ostomate and it felt too soon to give any tips. I was seeing how I coped; seen as it was a new year and not only did I have my stoma to consider but also my IBD. This year, I have much more going on, but I’ve prepared myself. So here are my hints and tips to get through the festive period without major incident: Carry extra supplies and medication. I carry two complete sets of spare ostomy supplies and…

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The “What is a Stoma?” Series – Part III

Welcome to Part III in my new blog series on “What is a Stoma?”  This instalment covers the question of what exactly having a stoma feels like, possible diet & lifestyle changes, potential complications and considerations of living with a stoma and where to get access to support & advice for coping with having a stoma. The information below I have complied from various sources including current ostomates of all types. I hope that this show the wide variation in how each type of stoma is dealt with; not only medically but on a personal & emotional level too.  This…

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February 2016

February, boy has it been a turbulent one, on the health front. For the past couple of bleary months, I’d been expecting my treatment plan to fail. I was looking at a last chance saloon with Vedolizumab as soon as I started it way back in October, but to have it official fail on February 5th was abit of a shock. It meant I had to kick my butt into gear and get something else sorted. Which had to be something I had yet to try, something outside the realms of conventional medical therapy. I should have known it would…

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Pre-Scope Assessment – 26.02.16

What is a pre assessment appointment? “Patients attending for a Colonoscopy procedure are seen by a pre assessment nurse prior to the date of their procedure. At this appointment the pre assessment nurse takes information from you and advises you how to prepare for the procedure. He / she will also give you the bowel cleansing medication and discuss your consent. At this appointment you are able to ask questions concerning the procedure, your medication and so fort. Failure to attend this appointment may mean your Colonoscopy procedure is canceled.” What happens at this appointment? I was taken into the Ednoscopy…

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Oh. Oh dear..

“I know, I am being hard on myself. And it isn’t too much of a big deal, but to me, it is. I should be a better patient. I’m good everywhere else, why is this so ‘difficult’ to do, manage, maintain?”

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