Oh ‘August’, Why do You Hate Me?

August, oh my. Patterns emerge when you’ve had your chronic illness for a while. There are some things you enjoy seeing the patterns towards; like when you can anticipate some symptoms or you get a click moment of clarity. But there are some patterns that do nothing but chip away at your emotions. August is that for me. Trigger, for…

That Seven Year Itch

Yesterday, I made my way to work; another Thursday commuting through town. Nothing special, nothing new, nothing different; just the same old routine. The same thing I’ve been doing for months over the summer. I scroll through my phone, enjoying the Throwback Thursday as I do most Thursdays, to find myself fixated on the date. My Timehop shows me everything…

Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

September Goals

It wasn’t until I came to draw up my bullet journal for September, did I think about my August goals! How did August go? I’ve been able to completely track my GI symptoms and we see some patterns emerging when it comes to what I eat and how it affects me. What has been biggest is seeing how important sleep…

August 2018

August; you still hate me   Every August seems to be my most dreadful of all the months. Without fail, this happens. And this year, whilst avoid an admission, I’ve still had to battle through. Stoma wise; despite gaining some weight – some, ha! – my stoma has been really settled. Except for a few days in the middle of…

Pancaking and Ballooning – An Education

What is Pancaking and what causes it? Pancaking is when the front and back of your ostomy bag get pulled together, resulting in no output being allowed to drop down into the pouch; instead it sits around your stoma, on your baseplate and can causes issues. It is believed to be caused either by the filter on the appliance being…

What does it mean to be a “patient”?

Just HOW do you do it *all* when you’re chronically ill? It is a question I wonder about from time to time. Sometimes I have my shit together and other times I don’t. And sometimes, this is just the way it goes; for some, for others, for the many. I don’t seem to have an off season with my IBD,…

Happy 2nd Stomaversary!

What I’ve Learnt and Achieve in the Last Twelve Months with my Ostomy   Year One with a stoma came and went with great highs and terrible lows. I started Year Two by saying this: But what did the next twelve months have in store for me? I would be admitted to hospital a few days later, in horrific pain which…

Iron Deficiency & IBD

What is Iron Deficiency and what can cause it? A lack of iron – a deficiency – commonly causes iron-deficiency anaemia (IDA). It occurs when your body doesn’t have enough iron to produce hemoglobin. Hemoglobin is the part of red blood cells that gives blood its red color and enables the red blood cells to carry oxygenated blood throughout your body.…

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