Clouds upon Clouds

Last year was the first year I participated in HAWMC. I was 7ish months into my Crohn’s journey and we were asked to make a word cloud with all the words we associated with our health condition. The same was asked this year. I thought, well this is abit recycled. Its abit of the same from last year, it won’t be anything new. Oh how wrong I was. This is last year, 2012’s word cloud:   What first stands out is the word confusion. Boy, was that true back in April last year. I was so confused as to why my body was so slow…


Day Twenty Three – Technology

“I wish this gizmo could track my condition!” Write about which device, application, program, etc. you wish helped to track your health. Write about how your life would change if there was no social media.  There is alot to be said for ‘health and social media’. It is extremely freeing and inexpensive to share and discuss issues you have with your condition. It can be a great portal in which to join conversations once diagnosed. How the veterans of the Crohn’s and Colitis world got through the times when social media didn’t exist, is somewhat incomprehensible to me. I try not to rely…


Day Twenty Two – Day-to-Day

Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. Write about the things you couldn’t live without – list 10 things you need or love most. I’m not sure about anyone else, but I felt – and some times, still do – feel incredibly lonely ‘suffering’ with my Crohn’s. It as if once I get a hold on things, some thing comes along and knocks me sideward and upset the balance. And its taken, and does take, alot of strength to remain in control and keep the balance tipped slightly in my favour. That undeniable,…


Day Twenty One – Adversity

“The flower that blooms in adversity is the rarest and most beautiful of all.” – Mulan. True or false? When do you bloom best?   As chronic illness sufferers, we have had to suffer through some tough times. What feels tough to one person, might not be the same for the next person. And that indeed is true within the chronic illness community and the Crohn’s community. It is all so individual. So, in some way, shape or form, we have all had difficult periods in our lives. Be it before illness, during diagnosis or through turbulent periods of ill-health.…


Day Twenty – Burnout

Write about burnout. What does it feel like? What are your burnout triggers? What gets you OUT of the pit of despair when nothing is going your way? I hope one thing comes out of this post about ‘burnout’ or ‘burning out’ and that is LEARNING TO ACCEPT IT AND NOT FIGHT AGAINST IT. After five months off work and being cooped up in the house or the hospital, I was eager to return to a ‘normal’ life. I knew that my lifestyle had to change and I’d spend the latter end of my time off getting used to my new…



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