It’s *that* time again!

Tomorrow is my Humira injection. All of this week has been building towards this date. Yet again. The further I get ‘into’ this ‘disease’, the more time I spend on this medication, the better I become at listening to my body; the more I know how much things follow a pattern. Today was particularly hard. It is Day 13 of the cycle,…

Twelve Days

So, twelve days ago – January 19th to be precise – I gave myself my second home injection of Humira. The first one since finding out I was in a sort of ‘remission’. I air quote this because the term and understanding of ‘remission’ is subjective and very unclear. It’s variety makes it difficult to form consensus, but I digress.…

Hello! My name is Louise and I have Crohn’s Disease, a form of Inflammatory Bowel Disease (IBD).

I was diagnosed in September 2011 after months of symptoms that didn’t really make much sense. In the years since; I’ve had many hospital admissions, tried all of the medication options open to me at the time but chose to have surgery in 2016 to remove a large narrowing in my small bowel. Three months later, I had my colon removed and I now have a temporary ileostomy.

I get called ‘amazing’ alot by the boy. Am I? Is that only because I’ve “been through so much”? Or is this beyond just being brave? Is it just me? Am I the only one who can’t see my bravery because it was all happening to me? If only everyone knew how badly I wish right now to be back…

Happiness

There is always some sort of expectation to be happy. Especially seen as I am “alive” and “healthy”. This usually comes from people without a care in the world. Those people who think my life is exactly the same as before I got sick. Well, sadly, it is not. And its not always a happy day for me. Why is…

Trust

This week has made me contemplate what exactly ‘trust’ is. Simply put it is a “firm belief in the reliability, truth, ability, or strength of someone or something.” Mostly, I’ve been considering who I choose to trust with important information. With my medical condition. My personal life. My past, my secrets, my dreams. All of those things are blurred most…

“Oh, the fickle nature of my life..”

Today was meant to be – it was – a great day. I finally had my MRI scan at Heartlands this morning. After 5 more weeks of waiting, I’m done with this run of tests for my Crohn’s. I never want it done again, I despise Klean Prep with all my being. In all honest, it was a pleasantly weird…

“Dearest blog..

.. I write today with a mind full of self-pity and frustration. My disease has hold on my life, every aspect of it. It is very solitary, dealing with and learning about it. I have to listen to my body more than I have ever done before, listen to it over my mind and over my heart. I’ve never done…

I am too eager to have everything work out so quickly.

Instagram

4   51
2   6
0   16
0   12
1   23
0   5
3   11
0   12
0   13
0   12
0   8
0   18
0   27
1   9

Looking for Something?