Young Crohn's

Medication

Infliximab #7 and Liver Problems

For all of 2014 my liver function tests have been steadily rising. When the new GI took over just before Spring, I suffered a couple of problems that lead me to A&E on a busy Saturday afternoon, in which we discovered how high my AST and ALT’s were – way over the parameter maximum of 40; some where in the 200’s – and the testing began. My GI order ultrasound, more bloods and finally a MRI scan in June before referring me to the Queen Elizabeth hospital in South Birmingham. My appointment was last Thursday, two days after Infliximab number…

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Medication

Infliximab #6 and more…

Updates galore tonight – I’ve been extremely busy and to some extend, ignoring my problems a little. The build up to the latest Infliximab infusion was interesting; ten days before I started experiencing extreme fatigue in my leg and arm muscles. This would get a little worse each day, until four days before when I was unable to raise my arms higher than my shoulders. I consulted with my GP to see if this was an inflammatory response from an infection I had (possibly) or were my joints being attacked because the Infliximab was all but gone? After a round…

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Awareness

World IBD Day

As this ordinary Monday comes to a close to many, I sit here going into the final few GMT hours of World IBD 2014 with some unrest. Should I show them? No one has seen these before, I’ve not allowed myself to bear these photos to other humans, not even other IBDers.. what am I scared of? What am I afraid of, apprehensive about? Why not be brave and share you, Louise? Yes, I even full first named myself, that’s how much of an indecision this is. But, I want to show people what IBD can do to you, of…

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Advice

Pause

Things have been pretty good lately. So good in fact, that its difficult to cast my mind back to a time when I was unwell and feel pretty rubbish. The infliximab has really been keeping my Crohn’s under control and I’ve hardly had any reoccurrence of my liver / hernia problems in the past couple weeks. In fact, since I accepted my new job, told my current employer I was leaving next month and I started driving, I’ve been a whirlwind of energy and positivity. That abruptly ended this morning. Having hardly slept all night – even when I did…

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Medication

Infliximab #5

Another eight weeks have passed..   Another Monday lunchtime spent at the hospital, this time only for two hours; a one hour infusion followed by a hour of observations. As always, there were problems prior to the infusion, discussed before the weekend in “Spring Forward” concerning my liver but after being given the green light to attend, I turned up, fretful from a good yet bad counselling session that morning, to have a difficult time being cannulated. Cannulation, I hear you say, isn’t this a common problem with IBD patients? It can be, yes, but then again, no. Despite how…

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